Developmental Disabilities - Georgia Council on Developmental Disabilities

Albany Tech takes a L.E.A.P. for Students with Disabilities

When Regina Watts arrived in 2008, Albany Technical College didn’t have an inclusive post-secondary education (IPSE) program. Watts had worked in the disability space for over a decade prior, and she wrote the idea for an inclusive program down on an initial list of goals. “I wanted to create a program for those students that would possibly not have the opportunity to go to college.”

Six years later, Watts still had the piece of paper, and she began to connect with other administrators across the state as other programs got their start. Eventually she received money through a federally funded grant to gauge interest. With help from the Georgia Inclusive Postsecondary Education Consortium (GAIPSEC), as well as many other people, grants, agencies and institutions, Watts created the Leveraging Education for Advancement Program (LEAP), which is entering its fifth academic year.

“Everything just fell in place with the grant, where we were able to see if there was a need, and most definitely there was a need,” Watts said. “It’s been a wonderful process of getting the program sustained and established.”

15 new certificatesWatts is now the special needs/disability services coordinator at Albany Tech and the director of LEAP. There are nine IPSE programs in the state of Georgia, but LEAP is the only one hosted by a technical school, where extra emphasis is given to hands-on education and practical experience.

At LEAP, students with disabilities take courses with peers and receive support through mentorship. Students can enter the program at the start of the fall, spring or summer semesters, and they typically take one course per semester. After two years, students earn a certificate and graduate with their class.

Students enrolled in the program typically complete a Business Office Assistant certificate, a credential approved by the Technical College System of Georgia and made up of six courses also available to Albany Tech’s larger student population. Watts says taking classes with peers and working with the program’s mentor-tutors allows for a holistic college experience built on education and socialization. “They are truly exposed to a lot,” said Watts.

Recently, the school’s board approved for Watts to offer 15 other certificates that students had expressed interest in. The fall 2020 semester is the first time a student has registered for a certification other than Business Office Assistant. The student registered for an Infant/Toddler Child Care Specialist certificate, and her ultimate goal is to work at a daycare.

“Students that probably would not have had an opportunity to go to college can come to the LEAP program and get what they need academically, socially and mentally as well — get the tools that [willhttps://www.youtube.com/watch?v=HtLYMVQq9Q4">video on my webpage. He blossomed into the person that was able to create a video [and] to be a part of the video that introduces what the LEAP program is all about. I am just so happy to be able to help someone to achieve their dreams.”

Since then, Watts has used her passion to continually improve the program and adapt to new challenges. “It is definitely a rewarding experience for me as well – to be a vehicle that can help an individual to better their lives,” she said.

by Clay Voytek


Read the entire Making a Difference - Fall 2020 

Disability Day: 2,500 Advocate for Jobs at 16th Annual GCDD Disability Day at the Capitol

Gov. Deal Commits to Jobs, Higher Education, Community Life, Freedom from Institutions GA Legislators, RespectAbility USA Hail Opportunities, Supports for People With Disabilities

ATLANTA (February 27, 2014) – More job opportunities and employment supports for people with disabilities was the overarching message of GCDD's 16th Annual Disability Day at the Capitol on Thursday, February 20. Governor Nathan Deal pledged continued support, GCDD announced re-energized focus for Employment First initiatives, and keynote speaker Jennifer Laszlo Mizrahi, President and CEO of RespectAbility USA called for the necessary votes to push the ABLE Act through the U.S. Senate (Achieving a Better Life Experience Act: H.R. 647).

"Today, more than two decades after the ADA was passed, 47% of working age Americans with disabilities are outside of the workplace compared to 28% of those without disabilities," Mizrahi said. "But we are not statistics, we are human beings with power, with education, and with value. And we know that together we can make changes a reality." RespectAbility USA is a new national, non-profit, non-partisan organization with a mission to correct and prevent the current disparity of justice for people with disabilities.

Governor Deal said, "A job serves as the launching point for independence, financial stability and...my desire for people to have access to these benefits of employment certainly extends to those in our state with disabilities. To address the barriers to employment confronting people with disabilities, we have a work group in the Department of Behavioral Health and Developmental Disabilities looking into these issues. I am asking them to recommend how we can move forward with an Employment First Initiative in Georgia."

"It is in this way that I hope to see more individuals able to pursue their own path to a job, a career or another form of participation in community life," Deal added.

"Governor Deal has been a friend to the disability community but today, I am proud to announce that GCDD has undertaken a process that, regardless of who is governor, we'll be talking about the passage of legislation to ensure that employment is the first option for all people of the state of Georgia," Eric Jacobson, GCDD Executive Director, said.

Rep. Keisha Waites (D-Dist 60) said to the swelling crowd, "I stand with you... to increase accessibility for every individual that may be disabled throughout the state of Georgia. I want to pull out two pieces of legislation that I have been working on with many of you in the audience...that will increase accessibility to electronic textbooks for the visually impaired and... will provide increased accessibility to your capitol, as well as the legislative office buildings next door."

Other legislators who attended the Rally included Sen. John Albers (R-Dist 56), Rep. Katie Dempsey (R-Dist 13), Rep. Winfred Dukes (D-Dist 154), Rep. Michele Henson (D-86), Rep. E. Culver Rusty Kidd (Ind-Dist 145), Rep. Alisha Thomas Morgan (D-Dist 39), Rep. Jimmy Pruett (R-149), Rep. Carl Rogers (R-Dist 29) and Rep. Dexter Sharper (D-Dist 177). They thanked the crowd for attending the Rally and encouraged people to contact their legislators about their needs and desires.

Rep. Dempsey, said, "We all have a story, you're right. Your personal story is what you need to share with each and every person in that building behind you."

"Know that it is time to unlock the waiting list. This is your state, my state and we deserve these services. Make no mistake about it, the people on the third floor and the second floor know that you are here," Rep. Dukes said.

2,500 community leaders and disability advocates gathered near the Capitol Steps and , in a collective voice, rallied for jobs, support for post-secondary education and release from institutions for people with disabilities. Governor Deal and Jacobson each praised the expansion of Georgia's post-secondary inclusive education program sponsored by GCDD, the Academy for Inclusive Learning and Social Growth at Kennesaw State University and noted the expansion of similar programs to four campuses in Georgia with the newest one slated to open this fall at East Georgia State College.

This year's Disability Day Rally also recognized the 15th anniversary of the landmark 1999 Olmstead Decision in which the US Supreme Court ruled it was unconstitutional for two Georgia women with developmental disabilities, Lois Curtis and Elaine Wilson, to be institutionalized against their wishes. Curtis, the sole surviving Olmstead plaintiff, was in attendance at last Thursday's Rally. In the spirit of the Olmstead Decision, the Atlanta Legal Aid Society (ALAS) and GCDD facilitated an opportunity for six individuals who have achieved freedom from institutional life to tell their stories at a dedicated StoryCorps recording booth created on-site especially for Disability Day.

Among the six storytellers was Andrew Furey, a self-advocate, artist and Eagle Scout from Lula who fought a long, frustrating battle to receive nursing supports in his home. "I didn't want to be in a nursing home; I wanted the right to stay in my own home." "I am Andrew Furey and I am Olmstead," he declared.

ALAS and GCDD presented "I Am Olmstead – Stories of Freedom" in conjunction with StoryCorps to recognize the triumph of individuals like Andrew and provide an opportunity for others in attendance to sign up to record their own stories in the future. StoryCorps partners with the Atlanta History Center and Georgia Public Broadcasting to record, preserve, and share the stories of communities in Atlanta. Selected StoryCorps recordings air weekly on National Public Radio's Morning Edition and every recording is archived in the American Folklife Center in Washington DC. The GCDD Disability Day 2014 theme, "We All Have A Story, What's Yours?" was echoed throughout the day and could be seen on the hundreds of t-shirts that covered the State Capitol grounds in a sea of blue.

Dawn Alford, GCDD's Planning and Policy Development Specialist, gave an overview of GCDD's 2014 Legislative Agenda and noted the house approved $250,000 to be used for supportive employment for 64 individuals with disabilities.

"Georgia's economic recovery and growth must include employment for citizens with disabilities. For every single dollar that a state spends on helping a person with a disability get a job, the return is anywhere from $3 to $16," Greg Schmieg, executive director of the Georgia Vocational Rehabilitation Agency (GVRA), said. "Hiring someone with a disability is not only good for business, it's good for Georgia."

Reverend Susannah Davis, pastor of Kirkwood United Church of Christ, led a prayer and a moment of silence to recognize and honor the memory of 10 Fallen Soldiers, Georgia's disability advocates recently deceased. After the rally small groups as well as groups of more than 250 from all over Georgia, adjourned to the Georgia Freight Depot for lunch, legislator visits, exhibits and other activities including banner signing, an accessible voting machine demonstration and the "I Am Olmstead – Stories of Freedom" listening station.

During this time, GCDD awarded Ralph "Robbie" Breshears from Augusta the Georgia Outstanding Self-Advocate of the Year Award - In Loving Memory of Natalie Norwood Tumlin. Disability Day at the Capitol is made possible by a host of partnering organizations and volunteers from Georgia's disability community. For a list of sponsors, visit www.GCDD.org.

GCDD, a federally funded independent state agency, works to bring about social and policy changes that promote opportunities for persons with developmental disabilities and their families to live, learn, work, play and worship in Georgia communities. A developmental disability is a chronic mental and/or physical disability that occurs before age 22 and is expected to last a lifetime. Visit www.gcdd.org for more information.

CONTACT:
Valerie Meadows Suber, Public Information Director 
Georgia Council on Developmental Disabilities 
404-657-2122 (office); 404-226-0343 (mobile) 
 
www.gcdd.org2014 Disability Day Photos: http://on.fb.me/MBngkY

Disability Day: Over 2,000 at Rally Speak Up for More Jobs and Education

On February 20, over 2,000 people rallied at the Georgia State Capitol steps to speak up for more jobs and access to post-seconday education for people with disabilities. The rally, which started at the Georgia Freight Depot, received motivation and inspiration from keynote speakers Jennifer Laszlo Mizrahi, founder, CEO and president of RespectAbility and Governor Nathan Deal, who also declared the day as Disability Awareness Day.

CBS Atlanta was on site for Disability Day and spread the message that people with disabilties should receive the same opportunities as everyone else.

CBS Atlanta News

Eric Jacobson Interviews with CBS Atlanta

On Tuesday, Feb. 4, the case against former special needs teacher Melanie Pickens received a final say from Judge Henry Newkirk. The Fulton County judge granted immunity to the former Fulton County teacher accused of abusing students with disabilities at Hopewell Middle School in Milton.

Upon the judge's decision, Executive Director Eric Jacobson was featured on CBS Atlanta in an interview giving his insight on the judge's decision and his hopes for the disability community.  

Watch his interview here:

 

CBS Atlanta News (This link is no longer active.)

Fall 2020 - WHAT’S HAPPENING IN WASHINGTON? Federal Disability Policy Updates

These past few months have seen a number of starts and stops in negotiations on a new Congressional COVID-19 relief package, and we expect a busy fall ahead as this Congress wraps up.   

COVID-19 Response:

Congressional Response: Congress passed three COVID-19 relief bills and an interim bill early this spring. In May, the House passed a new relief package, the HEROES Act, which included many disability priorities, most importantly, additional funding for the home and community-based services (HCBS) on which many people with disabilities rely. However, the Senate declined to consider the HEROES Act and instead, Senate Republicans released their own proposals, the HEALS Act in July and the “skinny bill” in early September. 

Read more about disability-related provisions included in the COVID-19 relief packages passed by Congress.

Both proposals fail to include disability priorities, like HCBS funding. They also contain “liability shields” that would give any business, nonprofit, school or medical provider immunity from liability for significant harm related to COVID-19 in many cases. This would threaten the safety of people with disabilities and older adults in congregate settings; make it easier for employers to escape liability for discrimination and safety violations in the workplace; and allow businesses to refuse to accommodate people with disabilities.

The Senate failed to pass the “skinny bill” in a vote in late September and negotiations appeared dead. But on October 1, the House passed a revised version of the HEROES Act. The bill includes increased funding for Medicaid and HCBS, as well as enhanced unemployment insurance; another round of recovery rebates; and funding for education, housing and food assistance. Negotiations between House leadership and the White House are continuing, but it remains unclear if or when the Senate will take up any new bill. For the latest updates and what you can do to ensure any future coronavirus relief bill includes disability priorities, check out our advocacy page.

Find more updates and details on the legislative proposals for COVID-19 relief package here.

Medical Rationing: We’ve previously discussed efforts to address disability discrimination in access to medical care during COVID-19, including complaints CPR and partners have filed with the Office for Civil Rights (OCR) at the U.S. Department of Health and Human Services. In August, OCR announced a resolution in response to a complaint filed by CPR and partners alleging that Utah’s Crisis Standard of Care Guidelines illegally excluded certain people with disabilities from accessing life-saving treatment like ventilators and deprioritized others based on their disabilities.

The resolution for the first time makes clear that hospitals must provide information on the full scope of available treatment alternatives and cannot steer people towards or condition treatment on “do not resuscitate” (DNR) policies. It also weighs in on the discriminatory impact of a number of other provisions common in many states’ rationing plans.

Find more on the Utah resolution.

Check out our medical rationing page for resources on federal and state advocacy.

Updates on Health Care Policies with Impacts for Georgia:

1332 Waiver: Georgia recently resubmitted an application for a waiver that would allow it to change how many Georgians purchase health insurance. The waiver would allow Georgia to stop using the federal marketplace to enroll Georgians in health insurance without replacing it with a state-based marketplace. Instead, Georgians would enroll in health insurance through insurers themselves or web brokers, which is likely to lead to confusion and coverage losses. GCDD and CPR submitted comments in opposition to the proposal, and we will keep you updated as the Centers for Medicare and Medicaid Services (CMS) considers Georgia’s application.

For more about  the 1332 waiver, check here and here.

Litigation Updates:

United States v. Georgia: The Independent Reviewer of the Olmsteadsettlement agreement between Georgia and the Department of Justice (DOJ) recently issued a compliance report. While the scope of the report was limited due to COVID-19, the report discusses areas of progress and concerns in the adult developmental disabilities (DD) and mental health systems. Concerns regarding the DD system include the impact of recent budget cuts; ongoing issues with support coordination; lack of clinical supports for people with DD and complex medical or behavioral needs; and failure to implement provider corrective action plans.

GAO v. Georgia (GNETS): This spring, both of the judges overseeing the two lawsuits challenging the Georgia Network for Educational and Therapeutic Supports (GNETS) – one brought by DOJ and the other by private advocates including the Georgia Advocacy Office and CPR – denied motions from Georgia attempting to dismiss the cases. Both cases are now in the “discovery” phase, where the parties formally gather information to use in a trial. We are interested in continuing to hear from families and other stakeholders about their experiences with GNETS. 

More information on the GNETS case can be found here.

You can contact the Georgia Advocacy Office by phone at (404) 885-1234 (or toll-free in Georgia at 1-800-537-2329) or by email at if you have information to share or questions about GNETS.

On the Fall Horizon:

Money Follows the Person: After the coronavirus pandemic hit, the Money Follows the Person (MFP) program, which helps people with disabilities and older adults move out of institutions and into the community, was given another short-term extension until November 30. On October 1, a larger government funding bill needed to avoid a government shutdown was signed into law to extend current government funding until December 11, including for MFP. This means that any discussion of a long-term or permanent extension, which we had been advocating for throughout this Congress, is unlikely until a new Congress begins in January 2021. Also, in September, CMS announced that states with operational MFP programs, including Georgia, can apply for additional funding that had been allocated by Congress.

Supreme Court Vacancy: Justice Ruth Bader Ginsburg, the author of the majority opinion in Olmstead v. L.C. affirming the rights of people with disabilities to live, work and participate in their communities, passed away on September 18. President Trump has nominated Judge Amy Coney Barrett of the Seventh Circuit Court of Appeals to replace Justice Ginsburg, and the Senate is expected to quickly consider her nomination.

As with all Supreme Court nominations, the disability community is examining her record on issues important to people with disabilities. Of note, Judge Barrett has publicly expressed opposition to the Affordable Care Act (ACA), raising concerns about how she might rule when the Supreme Court hears argument in November.

These updates represent only a small portion of what we’re working on. For more on our work, visit our website and connect with us on Facebook and Twitter.

Note: information current as of 10/5/20

By Alison Barkoff and Erin Shea, Center for Public Representation


Read the entire Making a Difference - Fall 2020 

GCDD e-news - December 2019

GCDD E news 1705

A Digital Newsletter from the Georgia Council on Developmental Disabilities    •   December 2019


In This Issue:

Eric Jacobson photo

A Message from the Executive Director

It seems like everywhere we turn, politically themed images are staring us in the face. They’re on TV, social media and billboards. We can’t escape them. We are in the middle of a presidential campaign, and in Georgia, the beginning of a campaign to elect every member of the Georgia General Assembly and members of US Congress. Regardless of party affiliation, politics are indeed everywhere.

GCDD has also been everywhere this fall. In fact, there has been a lot going on in our community since my last column. First, we helped get the word out about a series of family forums hosted by the Department of Behavioral Health and Developmental Disabilities (DBHDD) across the state. During the forums, DBHDD heard from the constituents about services for people with intellectual and developmental disabilities. Next, hundreds gathered in Athens for the Georgia APSE 2019 Training Conference to discuss increasing employment opportunities for people with disabilities in Georgia.

Finally, GCDD has been hard at work planning for the 2020 legislative session and subsequent elections. Since politics is slated to be at the forefront of the national and statewide stages in 2020, we are preparing for a big year. One of the ways in which we are preparing includes the return of Advocacy Days. Be sure to read more below about how to get involved at the Capitol, starting in January.

As another way to gear up for elections, GCDD was recently invited to participate in a discussion about people with disabilities and the ability to vote. Many are concerned that moving to strictly paper ballots will make voting inaccessible to many people with disabilities. For example, if you can’t see what’s on the paper, reach the paper or write on the paper, then how can you vote?

The introduction of electronic ballot machines years ago meant that many people with disabilities could vote for the very first time without assistance. Still, others say that these machines are not secure and vulnerable to cybersecurity threats such as hacking. I am not adequately convinced of a solution, but I do know that we must continue the work of making sure that anyone, including individuals with disabilities who want to vote, are able to do so. We must also be mindful that many people with disabilities want to do this independently and not with the assistance of someone else. 

This is an important time for all of us to make our voices heard. Make sure you are registered and prepared to vote, regardless of how difficult it may seem. This is your chance to have your voice heard. (Tip: Check your voter registration status, apply for mail-in voting, find your polling location and more via the Georgia Secretary of State’s My Voter Page.)

Check out GCDD’s website and join our advocacy network so that you can stay informed. We hope you enjoy reading this newsletter. Let us know your thoughts and comments about the magazine by writing to Managing Editor, Hillary Hibben, at .


Public Policy for the People: 2020 Advocacy Days are Here!

GCDD Advocacy Days LogoPublic Policy for the People provides public policy updates as it pertains to people with disabilities here in Georgia.

MARK YOUR CALENDARS for 2020 Advocacy Days: January 29, February 6, February 19, February 27 and March 11!

Join GCDD at the Capitol during the 2020 legislative session to learn about policies affecting people with disabilities, and join advocates from across the state in speaking with elected officials about these very important issues. We need your help to educate Georgia’s lawmakers about topics that affect our community.

What to expect at each Advocacy Day: Each day kicks off at 8 a.m. at the Central Presbyterian Church, across from the Gold Dome, where leaders from GCDD and other organizations will train and teach advocates how to approach legislators, make connections and discuss the topics that are important to you. After the interactive training, advocates and leaders will head over to the Gold Dome to meet with legislators.

Register for 2020 Advocacy Days.

Become an Advocacy Day Team Lead!Become a Team Lead for Advocacy Days

GCDD is seeking team leads for its 2020 Advocacy Days! Geared at preparing advocates to take a leadership role at the annual advocacy event, team lead volunteers will learn how to navigate the Georgia State Capitol and support attendees in speaking with their legislators. This is a great opportunity for anyone interested in honing their advocacy skills and leading others to raise their voices!

Team leads will earn $100 per each Advocacy Day for which they volunteer. Each individual must complete one training and fulfill all the responsibilities as determined by GCDD's public policy team.


Kayla Rodriguez PhotoKayla Rodriguez

Meet Our New Intern, Kayla Rodriguez

GCDD is thrilled to welcome Kayla Rodriguez to our team! As an intern in our communications and public policy departments, Kayla assists leadership on such initiatives as content creation, administrative support and more.

Earlier in 2019, Kayla participated in GCDD’s 2019 Advocacy Days where she learned about public policy issues, as well as how to identify and build relationships with her legislators. It is during this experience that she also learned more about problems facing the disability community and how people can advocate to solve them.

“My experience during Advocacy Days really helped lay the foundation of what I’d be doing in my internship,” Kayla said. “I left that experience feeling equipped and prepared to advocate for change.”

Overall, Kayla has worked professionally in disability advocacy for three years. She became familiar with the world of disability advocacy through the Autistic Self-Advocacy Network (ASAN) and hopes to work toward improving the lives of future generations.

Prior to joining GCDD, Kayla collaborated with some of Georgia’s most prominent leaders in the disability community. After high school, she joined the Bobby Dodd Institute’s Ambassador Program where she trained under disability advocate Kylie Moore. Through this program, Kayla met Mark Crenshaw, a director at the Center for Leadership in Disability at Georgia State University. She worked alongside Mark as a participant in the Georgia Leadership Education of Neurodevelopmental Disabilities Program (GaLEND). Through GaLEND, Kayla was introduced to My Voice. My Participation. My Board, a leadership and advocacy program, where she trained under training and advocacy specialist Molly Tucker.

Kayla continues to hone her leadership skills as the vice president and chief ambassador of Autistic Self-Advocacy Atlanta, an affiliate group of ASAN. She is also involved with the Atlanta Autism Consortium and co-created the Emory Patient-Centered Outcome Research Institute on Young Women on the Autism Spectrum Group with Dr. Susan Brasher from Emory University.

Originally from New York, Kayla lived in Florida and Virginia before settling in Georgia nearly seven years ago. Outside the office, Kayla enjoys video games, animation, rock/indie music, YouTube and hanging out with friends.

“My favorite part of being at GCDD is how kind and understanding everyone is and how calm the work environment is,” said Kayla. “I’m excited to be an intern here and look forward to making a difference!”


National Federation of the Blind Georgia logo

GCDD Honored by BELL Academy

In a hotel conference room sprinkled with a selection of non-visual toys and adapted board games, Raveena Alli typed out her name on a braille typewriter. Alli, a 13-year-old student mentor, started attending the BELL Academy to practice braille literacy skills when she was four years old. She was wearing a Ruth Bader Ginsberg shirt at the National Federation of the Blind of Georgia’s (NFBGA) 2019 state convention.

“There are things you do differently as a blind person,” Alli said while she demonstrated. “Things you wouldn’t even think about as a sighted person.”

On Oct. 5, the NFBGA honored the Georgia Council on Developmental Disabilities (GCDD) as a platinum-level sponsor and consistent supporter of the BELL Academy at its 2019 state convention in Augusta. BELL stands for “braille enrichment for literacy and learning,” and the academy is a week-long, immersive summer program that offers blind and low-vision young people a social and educational environment to learn fundamental literacy skills.

Olmstead Mark JohnsonMonopoly Board adapted for use by the blind.Seventeen students attended the NFBGA’s 2019 BELL Academy, which took place at Columbus State University this summer. Braille literacy and other non-visual skills have a profound effect on blind people’s abilities to learn, work and live fully. The residential camp includes a rigorous academic program, but organizers also make time for field trips, socialization and fun — all meant to build self-confidence and self-determination.

GCDD is involved with the funding and coordination of efforts like BELL across the state. Students get to keep most everything they are provided with during the program, including games and tactile sketch pads that help students conceptualize and learn by drawing. While recognizing GCDD at the convention with a speech and plaque, Jackie Anderson, an instructor of blind students at the NFBGA who created the first BELL Academy in Maryland, stressed the work and funding that makes the program possible. Anderson called the council a friend who answers calls for help in a big way.

“Thank you for helping us provide our students with the skills they need so they can live the lives that they want,” Anderson said.

Cheers and applause for the students, donors and organizers filled the room, and the small audience briefly seemed much larger. Community partnership is crucial to the BELL program’s continued existence, level of service and growth.

The crowd applauded as NFBGA honored the Georgia Council on Developmental Disabilities (GCDD) at its 2019 state convention in Augusta.The crowd applauded as NFBGA honored the Georgia Council on Developmental Disabilities (GCDD) as a platinum-level sponsor and consistent supporter of the BELL Academy at its 2019 state convention in Augusta.Alli is too old for BELL now, but she continues with the program through BELLX, a local extension of the program where students continue their education and mentor their peers. Alli says that many blind kids don’t get access to the same level of resources and individualized instruction during the school year, and she appreciates BELLX for the chance to be with her peers and make a difference in younger kids’ lives.

“You need to have empathy, confidence and advocacy skills because the expectations for blind people right now are so low,” said Alli. “This gives us a chance to not only be proficient ourselves but take those things that we’re learning and use them for the greater good — to help younger kids who still have to learn braille.”


Family Forum photo A total of 384 people attended the DBHDD Forums.

Feeling Heard: Georgia Family Forums Achieve Their Goal

With the goal of gathering feedback from residents about the services they or their family members with intellectual or developmental disabilities (I/DD) receive, the Georgia Department of Behavioral Health and Developmental Disabilities (DBHDD), Division of Developmental Disabilities organized five public forums in September and October. 

A total of 384 people attended the forums held in Marietta, Lawrenceville, Macon, Savannah and online.

Family Forum photoDBHDD received insight directly from forum attendees which they will use to guide future decisions.The idea behind the forums was to increase collaboration with community stakeholders. DBHDD believes it is essential for families to have not only the opportunity to learn about the resources available but also have a voice, ask questions and share concerns. Rita Young and Associates organized the forums in collaboration with DBHDD.

Forum discussions covered the New Options Waiver Program (NOW) and the Comprehensive Supports (COMP) Waiver Programs, as well as the new Individualized Service Plan (ISP) and the I/DD Connects Portal for Family Access, both of which went live on August 19, 2019. Other topics included crisis services; competitive, integrated employment; electronic visit verification; and Georgia STABLE accounts.

The forums focused on the direction of services for individuals with I/DD in Georgia and provided attendees an opportunity to meet the DBHDD division director, Ron Wakefield, and his staff, including Amy Riedesel, Director of Community Services, and Ashleigh Henneberger, Director of Waiver Services.

Olmstead Mark JohnsonAttendees were glad to get the opportunity to be heard.

With an additional forum goal of increasing collaboration with community stakeholders, “The family forums created a space that allowed everyone to have a seat at the table. I’m honored to have the opportunity to listen and learn from individuals and their families all over the great state of Georgia,” said Wakefield. 

DBHDD explained the insight received directly from families was very valuable and will help guide future decisions within the Division of DD. In addition, the agency learned about system barriers and suggestions on how to address those barriers. The goal of hearing directly from families about what’s working for them and recommendations for areas for improvement was met. One key insight DBHDD heard was individuals value the services they have and want to continue to have both access and choice regarding their services. One Lawrenceville attendee’s evaluation of the forum was, “It was wonderful to ‘feel heard’.”

Plans by the DBHDD for the future include:

  • Having a clinical contributor for correspondence, informing providers and families of the services and trends related to I/DD services and supports. 
  • Providing a developer of content that promotes skills of health advocacy, targeting members of support systems of individuals with I/DD.
  • Developing clinical partner participation in initiatives, promoting access to clinical resources.

For more information about what was presented at the family forums, the PowerPoint, as well as frequently asked questions (FAQs), is posted on the DBHDD website.


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GCDD e-news - June 2020

GCDD E news 1705

A Digital Newsletter from the Georgia Council on Developmental Disabilities    •   June 2020


In This Issue:

Join Us

Dr. Martin Luther King, Jr. said, “There comes a time when silence is betrayal.”
 
The Georgia Council on Developmental Disabilities has never been silent, and we join in solidarity with those around the world who speak out against the systemic racism that led to the killings of George Floyd, Ahmaud Arbery, Tony McDade, Breonna Taylor and so many others.
 
As we do this work across our state that is the birthplace of Dr. King, as well as home to John Lewis, Andrew Young, Historically Black Colleges and Universities, the Center for Civil and Human Rights – and countless other individuals and institutions that uplift and foster the potential of Black Americans – we hear you and stand beside you.
 
Central to the work that we do at the Georgia Council on Developmental Disabilities is moving the needle of policy and legislation towards inclusion and equity for every Georgian. During this time, we want to amplify the voices of Black Americans and their right to live lives that are free from discrimination and oppression.
 
There is much work that needs to be done, and our goal is to include diverse thoughts and perspectives in that work.
 
Join us.

Eric Jacobson photo

A Message from the Executive Director

The times that we live in are different from any that we have witnessed in our lifetime.

For many people with disabilities, COVID-19 has meant isolation, lack of supports, sickness and even death. However, there may be new opportunities during this time that many of us have enjoyed, such as getting to know the people in our neighborhoods during evening walks or picking up groceries for each other when we go to the store. I think we should be asking ourselves, “What have we learned during this time that we did not have the time to do before?” Answers may include, “I learned to make sourdough bread,” or “I took an exercise class on Zoom.”  We can let COVID-19 get us down – or we can use this time to make our lives better.

In addition, many of us may be asking, “What happened to the Georgia legislature when COVID-19 forced us all to stay in our homes?” The legislature did not complete its work before the pandemic began. Now, members of the Georgia General Assembly will be coming back to finish the work they began. This includes creating and passing a budget for the state year that begins July 1.

Because of the economic chaos caused by COVID-19, state agencies are being asked to cut their budgets by 14 percent. Agencies such as the Department of Behavioral Health and Developmental Disabilities will submit to Governor Kemp how they will cut 14 percent out of their budgets. But what does that mean? Does it mean no new dollars to address the waiting list? Less money for waiver services? Cuts to inclusive post-secondary education programs?

We are counting on YOU to let your legislators know that even with an economy in trouble, people with disabilities will not accept cuts to their services and supports. You can also send the governor and legislature a clear message when you vote on June 9. Make sure to complete your absentee or mail-in ballot, so that your vote can be counted.

Finally, a couple of pieces of news from GCDD. First, GCDD will soon begin its five-year, strategic planning process. This is required by the Developmental Disabilities Bill of Rights and Assistance Act. We will be coming to you and asking about what is working in your communities and where the system is falling short. Second, we have a new executive committee that you can read about in this newsletter. We are excited to begin this planning year with new leadership focused on what the future can look like for Georgians with developmental disabilities.

We hope you enjoy reading this newsletter, and we want to hear from you. Let us know your thoughts and comments about by writing to Managing Editor Hillary Hibben at .


Public Policy for the People: What's Happening

State of Georgia Graphic with Capitol reversed insidePublic Policy for the People provides public policy updates as it pertains to people with disabilities here in Georgia.

Advocates, thank you for taking the time to read GCDD’s public policy updates about state and federal happenings. Regarding Georgia’s legislative session, we left off rather abruptly due to COVID-19, and the state session was suspended after day 29. For a recap on what advocacy took place during the first 29 days, please review the legislative recap in the April edition of our Making a Difference Magazine.

As promised, we want to make sure you know the goings-on under the gold dome. We received word from Speaker of the House David Ralston that session will officially resume Monday, June 15. Committees can begin meeting in-person on Tuesday, June 2, but only to begin reviewing legislation and hearing testimony. No official votes can take place until June 11. Right now, we are not sure what session might look like regarding in-person versus virtual advocacy, but you can guarantee that we will let you know as soon as we find out!

GA House of Rep logoClick to view GA House of Representatives meetingsState Policy Updates

Pull QuoteCurrently, members of both Georgia’s House of Representatives and Senate are conducting virtual meetings that are available for public viewing, focusing on our state’s budget. Some of you might recall that Georgia’s General Assembly is only required to pass one piece of legislation, and that is the state budget. The state budget for fiscal year 2021 (which starts on July 1, 2020) made it through the House prior to the suspension of session, but it is likely that that version will have significant changes because the governor is asking for 14-percent budget cuts from state agencies.GA Senate logoClick to view GA Senate meetings.

These significant budget cuts may be required due to the impact of COVID-19 on our state’s economy. To put that percentage into perspective, total cuts across all state agencies could be more than $3.5 billion, including $172.3 million in cuts to the Department of Behavioral Health and Developmental Disabilities (DBHDD). As of now, we do not have any proposals to better understand where those cuts might come from, but we are expecting to get more information in the coming weeks. (On June 3, 2020, Governor Kemp’s office announced that proposed budget cuts should reflect 11 percent, instead of 14 percent. GCDD remains concerned about these deep cuts to services and supports for Georgians with disabilities, and we continue to monitor what the governor’s recommendations could mean for our communities.)

Federal Policy Updates

Regarding federal updates, the U.S. House of Representatives released the HEROES Act on May 12, 2020, which would provide an additional $3 trillion in COVID-19 relief funds. The House voted and approved the HEROES Act on Friday, May 15. We were relieved to see some of our disability priorities included in the proposed legislation, including $100 million to the Administration for Community Living, which provides supports and services to seniors and people with disabilities and their loved ones.

Although the inclusion of these funds is encouraging news, they are not guaranteed in the final version, which means your federal senators need to hear from you!Remember, GCDD is here to help if you need any assistance locating the contact information for your representative and senator and/or drafting your message. (Tip: Try using this My COVID-19 Story template to get started on your story.)

email iconEmail us for more information:
Public Policy Research & Development Director Dr. Alyssa Lee:
Legislative Advocacy Director Charlie Miller:  

Election Day is June 9!

On June 9, Georgians will cast votes for in the primary election to choose the candidate for each party's nomination by voting through secret ballot, as in a general election.

With many shelter-in-place orders in effect, Secretary of State Brad Raffensperger announced that all ballots will be mailed to registered voters.

While early voting is already underway, the primary election features the presidential candidates, as well as the local and legislative primary races. The candidates who are selected by voters will be on the ballot for the November general election.

Find out who is seeking election/re-election in Georgia.Find out who is seeking election/re-election in Georgia.

Who is up for election?

  • 14 Georgia representatives in the U.S. House of Representatives
  • 2 senators in the U.S. Senate

Also, many state senators and representatives, commissioners, judges, councilpersons and other regional and local seats impact how people with disabilities work, live and play in their communities.

Two ways to vote:

Due to COVID-19, Georgia has allowed registered voters to submit absentee ballots instead of heading to the polls for early voting or on election day. Here’s what you need to know:

  • Absentee ballot – If you received your ballot and have not submitted it, be sure to mail it in to have your vote counted by June 9. Check out the Secretary of State’s Guide to Absentee Voting for how to complete and submit your ballot.
  • Going to the polls – To find out where you vote, go to the My Voter Page through the Secretary of State’s website. There, complete your information to find out your polling place for early voting and day-of voting. Please note that lines and wait times might be longer due to COVID-19 precautions, and practice physical distancing and other safety measures while out in public.

GCDD Welcomes New Chair and Executive Committee

New GCDD Chair Parker Glick New GCDD Chair
Parker Glick
The Georgia Council on Developmental Disabilities (GCDD) welcomes five new executive committee members who will lead the council and its work to bring about social and policy changes for people with developmental disabilities and their families throughout the state.

Parker Glick, from Decatur, was appointed to GCDD in 2015 and will now serve as the chair of the council. Born with arthrogryposis multiplex congenita (AMC), Glick works as the employment coordinator for the Statewide Independent Living Council of Georgia. An accomplished self-advocate, Glick was also appointed by former Governor Nathan Deal to the Employment First Council. As one of the younger members on the council, he leads by example so young adults with disabilities learn to develop and employ their own self-advocacy skills to affect change for Georgians with disabilities and the policies that impact them.

Heidi MooreHeidi J. MooreHeidi J. Moore is a parent advocate for individuals with disabilities and pediatric cancer research with Unite Our Voices, a place for families, providers, politicians and concerned citizens to find information and learn how to advocate for children and adults with disabilities and pediatric cancer. Moore has a 20-year-old son, Jacob, who has Down syndrome and autism and is also a cancer survivor. Appointed to the council in 2016, Moore continues to further her grassroots advocacy efforts to make a difference in the services families of children and adults with disabilities receive in Georgia. She lives in Alpharetta.

Mark Crenshaw smMark CrenshawMark Crenshaw was appointed to the council in 2019 and is working to positively influence policy and model services in Georgia. He works as the director of interdisciplinary training at the Center for Leadership in Disability at Georgia State University. As a council member, Crenshaw strives to help people understand that Georgians with and without disabilities benefit when they are welcomed together as valued members of their communities.Evan NodvinEvan Nodvin

Evan Nodvin, a self-advocate, has been a GCDD council member since 2013. Nodvin has participated in My Voice, My Participation, My Board with the Center for Leadership in Disability as well as Partners in Policy Making with GCDD. He works with the council to advocate for the end to the Medicaid waiver waiting list. Nodvin is a resident of Dunwoody.

Dorothy HarrisDorothy HarrisDorothy Harris,a self-advocate, serves as secretary of People First of Fitzgerald, where she lives. An active advocate, Harris has participated in Disability Day at the Capitol; advocated for a local library to stay open; and fought for public transportation in the Fitzgerald community that can serve everyone. She currently serves on the board of Jessamine Place Human Rights Committee and is an advisory member for GCDD.

GCDD works to create systems change for people with developmental disabilities and their families by increasing opportunities for independence and inclusion. By collaborating with, supporting and funding projects across Georgia, the council promotes innovative programs and activities to develop opportunities to enhance the quality of life for Georgians living with developmental disabilities. Since its inception in 1971, GCDD has advocated for more than 1.7 million Georgians with developmental disabilities and their families. 

Parties interested in more information about GCDD, or who would like to apply for the council, may find additional details and application guidelines on the GCDD website.


Georgia Developmental Disabilities Network Brings Together Resources for Disability Community

GDDN logoThe Georgia Developmental Disabilities Network (GDDN) is a consortium of 10 Georgia-based, disability-focused organizations that are committed to connecting people with resources during the COVID-19 pandemic. GDDN hosts weekly phone calls to support individuals with disabilities, parents and family members, caregivers and other stakeholders to share COVID-19 challenges.

The weekly webinars provide resources for Georgians with disabilities and other stakeholders that offer guidance on navigating various topics such as Medicaid waivers, employment, Appendix K and more.

The resources are available on GCDD’s website. Click the category of interest below and access various links, recordings and information.

To see all documents, visit the main “Georgia Resources” folder via Google Drive.

GDDN partners include: The Arc Georgia, Center for Leadership in Disability at Georgia State University, Down Syndrome Association of Atlanta, The Fragile X Association of Georgia, Georgia Advocacy Office, Georgia Council on Developmental Disabilities, Institute on Human Development and Disability at the University of Georgia, Parent to Parent of Georgia, Spectrum Autism Support, Education and Resources and Uniting for Change.


Calendar Spotlight

The Disability Vote Counts 2020
Remember to vote on Tuesday, June 9th!
 

GCDD e-news - March 2020

GCDD E news 1705

A Digital Newsletter from the Georgia Council on Developmental Disabilities    •   March 2020


In This Issue:

Eric Jacobson photo

A Message from the Executive Director

Though we are still in the first quarter of 2020, it has already proven to be a year full of political intrigue. Here is what we know so far: we know this is an election year, and we will elect a US president, every member of the Georgia US Congressional delegation and every member of the Georgia General Assembly. We know that the Georgia General Assembly passed an amended fiscal year 2020 (AFY 2020) budget that reduced many of the cuts that Governor Brian Kemp attempted to implement in his AFY 2020 budget recommendations. We also know that the governor’s budget recommendations for fiscal year 2021 (FY 2021) did not include any new money for NOW/COMP Medicaid waivers. This means that the 6,000-plus people on the waiting list will remain there throughout FY 2021, and the list will only continue to grow. 

In the coming weeks, we will hear much discussion over the need for more people to go to work and for people to be more independent and tax-producing citizens. However, much of this is impossible for Georgians with developmental disabilities without a NOW or COMP Medicaid waiver. In truth, rather than moving forward, we are falling further behind. 

It is your voice that we need NOW. Call your Georgia senator and representative! Call the governor’s office and let them know about you or your loved one and why we need additional waivers. Tell them that you vote, and as a Georgia citizen, you recognize the need for more waivers – and you hope they do, too. After all, with NOW/COMP waivers, people can be independent, productive, included and integrated in their communities and self-determined in their lives. (Note: If you don’t know who your Georgia senator and representative are, visit Open States and enter your home address to find out.)

After you have let your elected officials know about the waiver situation, the next step is to make sure you are registered to vote. The primary elections in Georgia are March 24, and the general election is November 3. People with disabilities are the largest minority voting bloc in the country, so let’s make sure we have an impact on the election. Make sure you are registered to vote and find your polling place so you can participate on March 24 and November 3. 

Finally, join us for our final Advocacy Days on March 9 and March 18. This will be your opportunity to let your legislators know about the important issues including competitive, integrated employment and the school-to-prison pipeline. Read the articles below to learn more about Advocacy Days. Also, check out how you can celebrate Developmental Disabilities Awareness Month, visit the latest blog from our intern, Kayla, and more.

We hope you enjoy reading this newsletter, and we want to hear from you! Let us know your thoughts and comments by writing to Managing Editor Hillary Hibben at


Public Policy for the People: Hello, DD Awareness Month!

DDAM-logo-Schofield-768x626Public Policy for the People provides public policy updates as it pertains to people with disabilities here in Georgia.

The Georgia Council on Developmental Disabilities (GCDD) is proud to recognize March as Developmental Disabilities (DD) Awareness Month. The goal for this month is to create awareness about developmental disabilities, teach the importance of inclusion within every aspect of life and to share the stories of individuals with a disability to show that a successful life is possible.

We at GCDD are proud to celebrate DD Awareness Month in March and all year long! Through its many partnerships, the Council works to build a Georgia that is more inclusive and integrated for people. The partnerships focus on working with local groups to build welcoming communities; expanding and leveraging the existing grassroots, community-based coalition to develop and implement a plan to reduce the number of African American males in special education classes who are at risk of being pushed out of school and into the juvenile and criminal justice systems – a trend known as the "school-to-prison pipeline" (STPP); and developing a collection of stories from across the state that give a glimpse into everyday lives of everyday people with developmental disabilities, among many other projects underway.

The campaign is designed to raise awareness about the inclusion of people with developmental disabilities in all facets of community life, as well as awareness of the barriers that people with disabilities still face at times in connecting to the communities in which they live.

How can you raise #DDAwareness? Join us at the Capitol for our last two Advocacy Days – March 9 and March 18 – to educate and inform our lawmakers about Employment and SToPP. 

Share your support of National Developmental Disabilities Awareness Month on social media with the hashtag #DDAwareness2020 & #GCDDAdvocates.

GCDD Advocacy Days LogoGreat Start to Advocacy Days!

Georgia’s advocacy community has been hard at work! At GCDD’s first three Advocacy Days, the Council welcomed over 400 advocates and over 50 team leads who collaborated to build relationships and educate lawmakers about home and community-based services, Gracie’s Law and post-secondary education!

Check out some of our photos from advocates from the past three Advocacy Days!

Two More Advocacy Days Left!

Advocates, GCDD will host its final Advocacy Days on March 9 and March 18, wrapping up a great advocacy season! 

  1. March 9 - Competitive, Integrated Employment– Advocate for policies that improve competitive, integrated employment options for Georgians with developmental disabilities. 
  2. March 18 – School-to-Prison Pipeline (SToPP) – Advocate to keep African American males in special education classes from being pushed out of school and into the criminal justice system.

Join advocates from across the state in speaking with elected officials about these very important issues.

Register for Advocacy Days


Kayla Rodriguez PhotoKayla Rodriguez

Rodriguez Pens Blog Series, Kayla’s Corner

GCDD’s Public Policy and Communications intern Kayla Rodriguez has worked at GCDD for the past four months learning all the ins and outs of disability policy and communications. To document her experience, Kayla started her own blog series, Kayla’s Corner, to share about her experience in her first job out of college, her own personal and professional growth and what she’d like other young adults with disabilities like her to know about employment. 

Read her blogs: Welcome to My Blog, It’s Time To Advocate, What Issues Matter to Me


Updates on Competitive, Integrated Employment for Georgians with Disabilities

— Written by GCDD Executive Director Eric E. Jacobson

In 2018, the Georgia General Assembly, along with the governor, approved the passage of House Bill 831, Georgia’s Employment First Act. Georgia’s Employment First Act was signed into law by Governor Nathan Deal on May 8, 2018, and declared Georgia a state in which competitive, integrated employment is the first and preferred option for citizens with disabilities, regardless of the severity of the disability. To promote and implement this mission, Georgia’s Employment First Council (Council) was created and charged to:

“Advise the Governor, General Assembly, and state agencies as to the adoption and integration of a policy that recognizes that competitive integrated employment, including self-employment, is the first and preferred option of all state funded services provided to working age individuals with disabilities…known as the ‘Employment First Policy’.” (49-4-52)

Furthermore, the Council is tasked with the following actions:Matthew Roush with Rep Sheila Jones

  1. Developing an Employment First training plan for providers;
  2. Coordinating and conducting educational activities with other agencies to increase awareness of Employment First;
  3. Evaluating the funding mechanism for inclusive post-secondary education (IPSE) programs in the state; and

Governor Deal appointed members to the Employment First Council, and over the last two years, quarterly meetings have been held. The Georgia Vocational Rehabilitation Agency (GVRA) has been the host to the Employment First Council, and its Executive Director, Shawn Ryan, is the chairperson.

To date, it has held five meetings and established three committees to get its work completed: 

  • Communication: The Communications Committee is charged with disseminating information regarding the initiatives of the Employment First Council to community partners.
  • Data: The Data Committee is charged with collecting all relevant data within the community.
  • Training: The Employment First Council will be creating training for its statewide partners regarding the process of changing the employment outlook with the community and assisting organizations to transition into competitive integrated employment.

As a member of the Council, I have taken it as my duty to be the voice of people with disabilities who want to go to work and earn a living wage so they can be independent, productive taxpayers in our society. Also, it is my responsibility to remind members that a lot of work has been done or is in place, like the Advancing Employment Technical Assistance Center at the Institute for Human Development and Disability at the University of Georgia. We are simply waiting for the opportunity to move Georgia ahead in the area of supported and competitive employment. However, this has not been an easy task because of the many changes being implemented at agencies like GVRA. 

A parallel effort has been taken up by the Department of Behavioral Health and Developmental Disabilities (DBHDD). This effort has already announced that its goal is to increase by three times the number of people with developmental disabilities who are in competitive, integrated employment over the next four years. The organization plans to host a summit later this month to talk about its progress. 

In the meantime, the Employment First Council has produced, but not yet submitted to Governor Brian Kemp’s office  and General Assembly, its second report. In the report, members debate the policies that are currently barriers for people to go to work and the remedies for these barriers. The Employment First Council has promoted the following recommendations:

Communication

  1. Develop a marketing plan for Employment First consumers, employers and providers. The plan could emphasize why Employment First practices, including competitive, integrated employment, are important to Georgia through stories of supported employment experiences and outcomes.
  2. Develop unique Employment First branding that will ensure uniform branding and consistent messaging. Consider partnering with other Georgia employment initiatives to adopt a coordinated branding approach.

Data

  1. Develop a coordinated website or information delivery system to provide potential and current clients with “one-stop shopping” of available agencies and services (both private and public). The website would house all employment initiatives in Georgia. A possible website option that currently exists is the “Advancing Employment” website.
  2. Develop and maintain a comprehensive data collection and reporting system that incorporates consistent, standardized data points across all relevant agencies.

Training

  1. Form a group represented by GVRA/Department of Education(Ga DOE)/DBHDD to work on identifying, organizing and streamlining communication, services and training resources, with a focus on assisting organizations to phase out their use of subminimum wage certificates.
    a. Create certification standards and training programs that are uniform across agencies and inclusive of organizations of all sizes.
    b. Include review of disability etiquette and appropriate terminology.
  2. Support training and other efforts to create a network of providers who are dually eligible to serve individuals who receive services through GVRA and DBHDD.
  3. Incorporate a business consultant role within DOE and DBHDD whose role would be to provide support and services directly to a business engaged in disability hiring initiatives. GVRA currently employs multiple individuals in this role. 

Policy

  1. State agencies responsible for providing support to individuals with disabilities should coordinate policies in order to create a more efficient and effective system of services. 
  2. Because the United States Center for Medicaid and Medicare Services (CMS) has adopted the Home and Community Based Settings (HCBS) Rule that all states must be in compliance with by March 2022, the State of Georgia should pass legislation that phases out 14(c) certificates that currently allow people with disabilities to be paid subminimum wage. [1]
  3. Ensure alignment regarding the definition of “disability” across agencies and providers, particularly as it relates to appropriate application of training, services and employment opportunities

Financial Priorities

  1. Recommend an equalization in funding between Supported Employment Services, Community Access Groups and Pre-Vocational Services to assist the organization in increasing the hourly rate of Georgia’s supported employment services to national averages so that providers can cover costs for supported employment.
  2. DBHDD currently pays through its Medicaid Waivers $17,856 a year for facility based non-employment services (community access group) and the rate for most people served in supported employment services is $7,069.  Capped rates of $10,760 and $17,856 exist for supported employment. These rates are based on an hourly rate of $29.64 which is below documented provider costs, so these higher caps are almost never reached [2].  A cost-saving solution would be to revise the rates to indicate that employment is a priority.
  3. Assistive technology is an opportunity to support people with disabilities to be more independent and economically self-sufficient. Recommend that DBHDD fund assistive technology through the Medicaid waivers or state grant-in-aid.
  4. Assistive technology is any device, software or equipment that helps people work around their challenges. Some examples of assistive technology are text-to-speech and word prediction. Assistive technology includes low-tech tools and is more commonly found in workplaces thus reducing the stigma of having a disability and being able to work in a competitive, integrated job setting in the community with people without disabilities. It is often more cost-effective long term than on-the-job, in-person support. 

We expect that these recommendations will be submitted very soon to the governor and General Assembly. Our next steps are to develop implementation plans for each of these recommendations.  You can follow the work of the Employment First initiative online.
_____________________
[1] Note: The 14(c) Section of the Fair Labor Standards Act (FLSA) is known as the Subminimum Wage Certificate Program (14(c) certificates) and allows organizations to pay people with disabilities subminimum wage. Although the US Department of Labor’s Wage and Hour Division has released guidance stating the 14(c) program should not be the first or only choice of employment for people with disabilities, the program continues to be overused.
[2] Note:  This comes from the DBHDD Employment Leadership Committee, Funding Committee document “Barriers and Initial Actions” 11.22.2019


Enrollment Open for Cooperative Academy

The Georgia Council on Developmental Disabilities, Synergies Work and Green Worker Cooperatives have launched a co-op academy to empower and educate entrepreneurs with developmental disabilities to build successful businesses.

The first of its kind, the virtual co-op academy will guide entrepreneurs to turn their ideas into successful cooperative businesses. 

The Co-Op Academy will be a five-month worker cooperative development program that will run twice a year, and is free for participants. It will support 10 entrepreneurs. 

The organizations will be hosting two information sessions on:Co-Op Academy Program

  • Wednesday, March 11, 1-2 pm
  • Wednesday, March 19, 1-2 pm (if required) 

Recruitment Process: March
Application deadline Monday, March 23rd
Interview dates: March 16 - 27

Start Date: April 7, 2020 - Orientation/first session
End Date: May 28, 2020
Program: Tuesdays & Thursdays, 3:00-5:00 PM

A cooperative is an entity (business) owned by and operated for the benefit of those using its services. Profits and earnings generated by the cooperative are distributed among the members, also known as user-owners or worker owners.

For more information, reach out to GCDD at  

To learn more and review the requirements to participate, visit Green Workers Cooperative, or download the flyer.

To apply, complete the application.


Calendar Spotlight

Two More Advocacy Days Left!
Monday, March 9, 2020 – Competitive, Integrated Employment (CIE)
Wednesday, March 18, 2020 – School-to-Prison Pipeline (STPP)

REGISTER HERE.

 

GCDD e-news - September 2020

GCDD E news 1705

A Digital Newsletter from the Georgia Council on Developmental Disabilities   •   September 2020


In This Issue:


Eric Jacobson photo

A Message from the Executive Director

We recently lost one of the greatest Americans and a leader in the Civil Rights movement. John Lewis was more than a member of the U.S. Congress or even a civil rights leader – he was a hero to many people across the world. Those who had the honor to meet with John Lewis will never forget their first time – nor the conversations, stories and the connections he made between human rights for people of color, people with disabilities and any other marginalized community with which you may identify. 

I had the opportunity to meet with John Lewis several times. Every time, I learned something new about how we should treat people. One of the most important lessons that John Lewis spoke about was the importance of voting. This fundamental right in a democracy is the best way to create change. GCDD has written about and supported efforts to assert that the “Disability Vote Counts,” and as we get closer to November 3, 2020, it is important that each of us get educated on where the candidates stand, and how we plan to vote during the pandemic. We are being told that if you want your absentee ballot to be counted, get it in early. Remember what Justin Dart, the great disability advocate wrote: “Vote like your life depends on it, because it does.”

Also, in this newsletter, you will learn about GCDD’s Five Year Strategic Planning effort. Council members and staff are currently working on this plan that will be completed by August 2021, and we need your involvement. We recently held three townhall-style forums, and there are more ways you can be involved. Our survey is open till September 4, so take some time to complete it. And coming up, we plan to host a series of focus groups. This input will assist council members and staff in understanding the issues impacting you and your family. This information will be reflected in the goals and projects that GCDD supports in our next five-year plan. Read more about the many ways you can provide input into this effort. 

Finally, GCDD is proud to announce that that we have renamed our “Learning Support Fund” to the Dottie Adams Scholarship Fund. Dottie worked for GCDD for many years and passed away in 2016. She is best known for helping individuals with developmental disabilities and families find the resources they need to live their best lives. The scholarship fund will provide up to $2,500 per applicant to assist individuals and family members to attend conferences and other learning events – and then bring what they learned back to their communities. 

We hope you enjoy reading this newsletter, and we want to hear from you. Let us know your thoughts and comments about this edition by writing to Managing Editor Hillary Hibben at .


Public Policy for the People: Advocacy Outside of the Legislative Session: Let’s Talk Budget

State of Georgia Graphic with Capitol reversed inside

— Alyssa Lee, PsyD, GCDD Public Policy Research and Development Director

Public Policy for the People provides public policy updates as it pertains to people with disabilities here in Georgia.

During Georgia’s 2020 legislative session, we saw historic levels of engagement from our advocates, whether that meant showing up to GCDD’s advocacy days (pre-COVID, of course) or joining one of our call-in days. Although most of our time and attention goes to preparing for and engaging in Georgia’s legislative session, we want to take some time to talk about the importance of continuing our advocacy efforts year-round.

This conversation will focus on an extremely important, yet often overlooked, opportunity to make our voices heard: the budget process! Many of you are familiar with our advocacy efforts surrounding the budget during session, but there are actually numerous opportunities to engage in advocacy around our state’s budget before the session even begins. To effectively advocate for our budget priorities, we first need to understand Georgia’s budget process. We will provide a brief overview, but to access the detailed, seven-phase process, please visit the Governor’s Office of Planning and Budget (OPB) website.

Each year, the governor requests all state agencies to develop a budget for the upcoming year (note: Georgia is currently working on the creation of its fiscal year 2022 budget which starts on July 1, 2021). State agencies do most of their budget development during the summer and typically deliver their budget recommendations to the governor’s office in September. While state agencies are developing their budgets, we can advocate for our needs by meeting with state agency officials and attending board meetings.

An example of a common state agency we often work with is the Department of Behavioral Health and Developmental Disabilities (DBHDD). This state agency is responsible for requesting new NOW/COMP waiver slots in the upcoming budget. Although this year’s opportunity to engage state agencies during their budget development has passed (Governor Kemp requested all budgets be sent to his office today, September 1!), there is still plenty of time for you to advocate for the issues important to you and your family.

Now that the state agencies have passed their recommendations on to the governor’s office, our advocacy efforts will be focused on educating the governor’s office on the supports and services you need. First, you might want to look over the recommendations from the state agencies so that you know what was included and what was left out. You can typically find the recommendations from state agencies on this OPB budget page. Once you have that information, you can start by requesting meetings with the governor’s staff. The governor usually has a staff person knowledgeable in specific topics, and it is most effective to discuss your issues with that staff person.

In addition to meeting with a staff person of the governor, you can also call and email your concerns and requests. The governor’s office will work throughout the autumn months on creating the governor’s budget proposal, which is often distributed in January at the start of Georgia’s new legislative session.

For administration contact information, please visit the governor’s website. And please reach out to our Public Policy team if you need help locating contact information or drafting talking points!

email iconGCDD Public Policy Team
Public Policy Research & Development Director Dr. Alyssa Lee:
Legislative Advocacy Director Charlie Miller:  


GCDD'S FivGCDD 5YP logo 20 07rgbe Year Planning Process Update – August 2020

In the past few weeks, GCDD has held three townhalls, released a survey and will be hosting focus groups to learn what is important to people with developmental disabilities across the state. The final townhall wrapped up last Thursday, and over the course of three different meetings, we learned a lot about what people are seeking from their communities, the state and even GCDD. Read more about the townhall meetings and how you can still advocate for yourself, your family member or someone you know.

Mia Got COVID

Pat and Mia NobbiePat Nobbie, GCDD' former deputy director, who wrote the column Mia's Space for Making A Difference magazine, shares an important story that affected her daughter, Mia. Having worked in Washington, DC while Mia lives and works in Athens, GA, Nobbie shared stories of Mia's growing independence and advocacy for herself through employment, education and more. Most recently, Mia needed to advocate for herself medically. Nobbie writes about the importance of effectively communicating and advocating for medical needs.
 

Mia has lived with a family for 11 years, in her own apartment in their home, participating in lots of typical family routines while also maintaining her own friendships, church affiliation and employment. It’s the best arrangement I could have imagined, and the advent of the virus only confirmed its value because Laura and Joe, with whom Mia lives, kept Mia safe from exposure like they did for themselves and their three children, while also keeping her busy after she was furloughed from her job in the short-stay surgery unit in early March.

Mia got COVID. Continue reading.


GCDD's Storytelling Project Wants to Hear Your Story!

Over the WireIn 2018, the Georgia Council on Developmental Disabilities (GCDD) partnered with Resurgens Impact Consulting and L’Arche Atlanta to collect stories from people with developmental disabilities in Georgia. The Storytelling Project was born.

Despite the ongoing COVID-19 pandemic, the project will continue this year with Over the Wire — a virtual, crowd-sourced collection of video stories.

“We really want to hear people’s stories and experiences,” said Irene Turner, the director of GCDD’s Storytelling Project. “This is a really good way for anyone who wants to tell their story through the Storytelling Project to do that.”

The GCDD is asking people to submit short video clips of themselves online, answering some questions that speak to their personal experience and story. Turner says the questions are meant as a guide, and she wants people to have fun with the project.

Those interested in participating can visit the Storytelling Project’s website, which has a designated page for Over the Wire with information and instructions. The webpage currently has a sample video of Martha Haythorn, a rising freshman at Georgia Tech who hopes to become a lobbyist in Washington, D.C. and effect national change. There is a Google form where videos can be submitted.

The project is now open for submissions and will continue for the next six months. Videos will be released on a rolling basis a few weeks after they’re submitted. Goodier Creative will be completing the videos with finishing touches and an introduction, and they’ll be promoted on social media continually through the spring.

“We wanted to do something that fit with the current flow of culture, so Over the Wire was conceived,” said Turner. “Over the Wire is responsive to our current time and place, in that people are consuming media and connecting online.”

Learn more about Over the Wire and how to submit your story on its website.


Grant Opportunity - Welcoming Community Movement Opens Grant for Social Justice Movement

The Real Communities Partnership (RCP) is an award-winning, signature concept that has received national attention for its innovation and diversity. To best address the many urgent issues we are now facing in society, the RCP is transitioning to the Welcoming Community Movement Fund (WCMF).  The WCMF is the natural evolution of the RCP and we are excited about the collaboration and progress that we expect it to engender. The WCMF is funded by GCDD and managed by Global Ubuntu. Global Ubuntu Logo

In the same spirit of collaboration and progress, WCMF is launching a social justice movement grant that is open for local organizations and movement coaches.

Grant Name: Welcoming Community Movement Fund - a social justice movement 
Application Submission Deadline: October 10, 2020
Grant Period: Once awarded, the grant period is 11/01/2020 – 10/30/2021.
Area of Emphasis: Equity from racial and disabilities justice lens. 
Number Funding Awards: There are 6-10 awards available. At least six (6) groups must be at least 70 miles outside of Atlanta.
Funding Descriptions: Local Initiatives & Movement Coaches

Deadline to apply is October 10, 2020.

Visit Global Ubuntu’s website to learn more and how you can apply.


GCDD Announces Dottie Adams Scholarship Fund

GCDD Announces Dottie Adams Scholarship Fund

For the last 25 years, the Georgia Council on Developmental Disabilities (GCDD) has used the Learning Opportunities Support Fund to award small grants (up to $2,500) to individuals with disabilities and their family members. GCDD recently announced the endowment will now be known as the Dottie Adams Scholarship Fund.

The new name was announced on Aug. 5, Dottie’s birthday, and is meant to support dedicated advocates in her memory. Money from the grants allows families to attend conferences and educational events for advocates. They’re then able to come back and educate their own communities on possible service improvements and new solutions.

The fund’s redesignation honors the nearly 35 years of service Dottie Adams gave to people with intellectual and developmental disabilities during her life as an advocate. Dottie was a creative and fearless pioneer who fought for more person-centered planning and brought the Project SEARCH employment program to Georgia. She served as its State Coordinator for the Council.

“I’ve never met anybody that has been known and been admired by more people with disabilities and their families than Dottie was,” said Eric Jacobson, the executive director of GCDD. “She worked across the state to help people get the resources they need and was beloved by many.”

The fund is open to anyone in the state with a disability or their families, and the money can be used for in state or out-of-state events. Families only cannot receive these funds in successive years. There is a quick application online, and all funds are released as reimbursements. Completed applications should be submitted 30 days before the event.

Currently, there aren’t many in-person conferences or events due to the ongoing COVID-19 pandemic, but the fund is always open for applications. Questions may be emailed to Lisa Eaves, Grants and Contracts Manager at GCDD, at .

GCDD SM Canva Job Announcement 20 08


Public Policy & Advocacy Fellowship

Announcing an exciting new opportunity! GCDD has created a Public Policy and Advocacy Fellowship Program, and we are looking to recruit our first fellow! The application process opens TODAY. Visit our website page to learn more and apply!

Calendar Spotlight

The Disability Vote Counts!The Disability Vote Counts 2020
Dates to Remember
  • Now open – Absentee ballot requests
  • October 5 – Deadline to register to vote
  • October 12 – Early voting opens
  • October 24 – Saturday voting
  • November 3 – Election Day

Visit My Voter Pageto check your voter registration, register to vote, or request your absentee/mail-in ballot.

More Don't-Miss Events!

Save the Date! Virtual Inclusive Georgia College Fair:October 29, 2020 from 3 – 4:30 pm
 

GCDD Emphasizes Importance of Political Engagement, Highlights Legislative Action Plan in Making a Difference Winter 2014

ATLANTA , GA – As the 2014 Georgia General Assembly convenes and the nation's midterm election season approaches, Georgia Council on Developmental Disabilities' (GCDD) winter edition of Making a Difference quarterly news magazine outlines GCDD's legislative priorities and covers how people with disabilities are engaging in the democratic process by voting in higher numbers to gain political power. 

Insight from local and national leaders, such as the Office of Disability Employment Policy's Assistant Secretary of Labor Kathy Martinez, shed light on ways to overcome and become a part of the democratic process through tips, suggestions and resources. 

Additionally, during the Georgia legislative session that began on Jan. 16, GCDD is focusing and strongly advocating Unlock the Waiting Lists!, a campaign that aims to "reduce and eventually eliminate the waiting lists for home- and community-based support for Georgians with disabilities."

While the legislative session is under way, an anticipated 2,000 Georgians will convene for GCDD's 16th annual Disability Day at the Georgia State Capitol on February 20, 2014 featuring a keynote address by Governor Nathan Deal. For more information, visit www.gcdd.org/public-policy.html.

In the "Expert Update," Mark Perriello, president of the American Association of People with Disabilities (AAPD), answers questions on why it is important that Americans with disabilities engage in the political process. Perriello discusses the progress that has been made in the disability community, and why more voter turnout can mean more progress and change for the better.

Perriello's discussion on significant political engagement aligns with the guest column commemorating one of the disability community's biggest legislative victories. The landmark US Supreme Court's 1999 Olmstead Decision celebrates its 15th anniversary year with a four-part series covering the time before, during and after the Olmstead Decision and its effects on the community. The articles are written by Talley Wells, director of the Disability Integration Project at Atlanta Legal Aid Society.

This issue also features an inside look into the ASPIRE (Active Student Participation Inspires Real Engagement) program, an educational approach that is becoming popular across Georgia schools for students with disabilities. Through a grant funded by GCDD, the program is part of the student-led Individual Education Program (IEP) initiative that has students contribute content, "which allows them to become more involved and responsible for their education," says Cindy Saylor, GCDD Partnerships for Success coordinator and ASPIRE consultant.

GCDD’s next quarterly meeting will be held in Atlanta on April 17-18, 2014. All meetings are open to the public.

About Making a Difference:

Making a Difference is published by Georgia Council on Developmental Disabilities (GCDD). Current and past issues can be accessed online at gcdd.org and hard copies can be requested by contacting the GCDD Office of Public Information. The magazine is available online in accessible PDF and large print format, as well as on audio by request. www.gcdd.org/news-a-media/making-a-difference-magazine.html

CONTACT:
Valerie Meadows Suber, Public Information Director
Georgia Council on Developmental Disabilities
404-657-2122 (office); 404-226-0343 (mobile)

GCDD IMPACT - GCDD Receives Five Year Strategic Plan Feedback from Disability Community

During the months of August and September, GCDD hosted listening sessions and focus groups to hear from people around the state about what issues mattered to them. To make sure Georgians with disabilities, their family members, caregivers and community advocates shared what changes they’d like to see in Georgia, GCDD hosted three virtual townhalls; convened six focus groups; and opened a survey to collect detailed information from respondents. 

What did we find out?

Over 200 people attended the town halls and the audience had a diverse representation of ability, race, geography, gender identity and sexual orientation.

11 people participated in the focus groups for professionals

  • Gender
    • 9 cis women
    • 2 cis men
  • Race
    • 5 African American/Black
    • 6 white
  • Hometowns
    • Valdosta
    • Marietta
    • Smyrna
    • Fayetteville
    • Milledgeville
    • Tifton
    • Atlanta

11 people participated in the focus group for PWDD

  • Setting
    • 10 urban/suburban
    • 1 rural
  • Age
    • 1 - 18-24 year old
    • 8 - 25 - 44 year olds
    • 2 -45 - 64 year olds
  • Race
    • 8 white
    • 2 African American/Black
    • 1 Middle Eastern
  • Gender
  • 5 cis women
  • 4 cis men
  • 2 undisclosed
  • Sexual orientation
  • 8 heterosexual
  • 2 asexual
  • 1 prefer not to say

7 people participated in the focus group of family members

  • Gender
    • 6 cis women
    • 1 cis man
  • Race
    • 3 African American/Black
    • 3 white
    • 1 Native American

340 surveys received

  • 325 unique respondents
    • 23% said they had a disability
    • ~61% were family members
    • ~18% service providers
  • Top 3 Areas for Focus:
    • Waiver Services
    • Employment
    • Housing
  • Top 3 Barriers
    • Lack of knowledge on resources available
    • Waitlists
    • Lack of money

Through these various approaches, many common themes emerged as concerns for the disability community. Some included:

  • Employment
  • Transportation
  • Advocacy
  • Innovation
  • Diversity
  • Eliminate planning list
  • Coalition building
  • Transition planning
  • Peer support
  • Intersectionality
  • Technology
  • Advocacy training
  • Expanded services in rural areas
  • Integrated housing

So, what comes next?

With the feedback received, the council will now work to construct the Five Year Strategic Plan based on what we’ve learned from the community and our work to-date.

GCDD will analyze all the data gathered through focus groups, surveys and townhalls to decipher common themes. GCDD is excited about the powerful and intersectional experiences the community shared openly and candidly. After the review, the council will begin to craft goals across the domains of systems change, capacity building and advocacy where the council is charged with having impact.

If you were not able to participate, the Council will collect more feedback on the plan when it is completed and ready for public input in spring 2021. Stay tuned!


Read the entire Making a Difference - Fall 2020 

GCDD STORY COLLECTION - When Hobby Becomes Career

by Moira Bucciarelli, Photographer: Haylee Fucini-Lenkey

Nandi – short for Nanditha – is finally home. She has lived in a variety of places, some better than others. Nandi gets emotional as she recalls painful experiences from her group home life – in one instance being told to pack up and move on short notice; in another being confronted and shouted at by a staffer.

These distressing experiences have led Nandi to move back home with her parents at age 35. This time, she moved into a small apartment her architect father built for her. It is just a stone’s throw from her parent’s simple ranch home and aquaponic garden on a wooded lot outside Macon. Nandi’s family paid for all the construction and furnishing of the apartment home.

Nandi is a woman with a visual impairment and Down syndrome who lives in the Macon area. She stands at the doorstep of her very own home, thrilled to have visitors to show around. She starts in the living room, then the kitchen, and then her bedroom. The walls of her bedroom feature beautiful and colorful framed photographs that Nandi has taken – a smiling dolphin and a graceful sailboat. She tells us how she discovered her talent for photography through a club called the ShutterBugs Club.

Nandi is able to thrive and succeed at home due to the love and dedication of her parents. Her mother spends 20 hours or more per week on Nandi’s support, care and advocacy. But Nandi also has a participant direction COMP waiver that allows her 50 hours of caregiver support each week. Having these caregivers allows Nandi to have a vibrant community life where she contributes through meaningful roles. Nandi’s mom says about the positive impact of the waiver: “It has vastly improved Nandi’s independence, self-determination, ability to work and general quality of life.” In addition, her social security disability insurance helps cover her living expenses. If Nandi didn’t have these financial resources, she would most likely still be living in a group home or institution.

Thanks to these resources, Nandi has also been able to supplement her income through entrepreneurship. With the encouragement and guidance of her care team, Nandi’s interest in photography led her to start her own small business, “Scan with Nan.” The scanning business idea is a good fit for Nandi, because, as she admits with a disarming self-awareness, she “gets distracted easily, especially by TV.” At one of her previous jobs that became a problem, as there was often a television on in the background. But at home with her caregiver or her mom, she can focus more easily and take breaks when she needs them.

Her caregivers are critical to giving Nandi the support she needs to set goals and allocate time for her scan orders, but also participate in her numerous community and social events. Because Nandi is not all about the business, she spends about 20 hours a month engaged in volunteer and community service. She does public speaking events, where she talks about ways people with developmental disabilities can plan for transitions from school to work or life in the community. She serves on boards and does advocacy work, and recently was hired with the “Living Well Georgia” project for a five-year period. In that role, she will co-train direct support professionals about “supported decision-making.”

Getting the COMP waiver was not an easy or quick process. After years of perseverance, they finally received a letter from the Georgia Department of Behavioral Health and Developmental Disabilities saying Nandi had been determined eligible for waiver services and was on the waiting list. In 2005, they received the news that would change their lives for the better. “We literally jumped for joy and thanked God when we received the letter saying Nandi was approved to receive services. Unfortunately, from the approval letter to the start of services was an incredibly long time with more follow ups and jumping through hoops.” It wasn’t until late 2005 or 2006 that Nandi began to receive NOW Medicaid waiver services.

As Nandi’s mom says, “The waiver has given us joy to see Nandi able to live her own life and to grow in so many areas. We have peace in knowing that it is possible for Nandi to live a good life in her dream home. We thank God that she has these wonderful opportunities and experiences.”  Thanks to the waiver, Nandi and her business are flourishing. The Isaac’s story demonstrates the perseverance and hope that it takes for families to receive the services and supports they need to thrive.

GCDD’s Storytelling Project paints a picture of the complex systems of support that enable people with developmental disabilities to live their best lives.

Spanning Georgia’s 56 state senate districts, these stories feature at least one individual who resides in each district – allowing this project to become a vehicle of advocacy for Georgians living with disabilities. The stories highlight racial disparities, socioeconomic inequities and how a situation can play out in two different circumstances – one where people are or are not supported by the system.

6,000 Waiting Documentary

6,000 Waiting tells the powerful stories of three Georgians with developmental disabilities whose lives are significantly impacted by the staggering lack and complexity of state Medicaid waiver funding. With persistence, courage and self-determination, they fight to access the resources they desperately need to live life on their own terms. 6,000 Waiting will premiere this winter and will support GCDD’s 2021 advocacy actions. You can now watch the trailer here!

In the upcoming months, the storytelling team will host virtual screenings for both private and public audiences. In addition, they will submit 6,000 Waiting into several film festivals across the state of Georgia. Stay tuned to the GCDD storytelling page for more details on these screening opportunities.


Read the entire Making a Difference - Fall 2020 

GCDD VIEWPOINT - A Time of Opportunity

As we move closer to 2021, we can either look at this time with regret and sadness – or as a time of opportunity. Though battling COVID-19 has meant being away from friends and family, new technology allows us to be together even when we are far apart. We at the Georgia Council on Developmental Disabilities (GCDD) have learned so much from YOU, those who continue to participate in the bi-weekly Georgia Developmental Disabilities Network COVID-19 Zoom sessions or the weekly Community Strong virtual gatherings.

You have shown us how you have struggled to cope with COVID-19 and how you have overcome many challenges during this time. We have been and will continue to be with you every step of the way.

October is National Disability Employment Awareness Month. Read in this edition of Making a Difference about the opportunities we have towards creating a system that will help more people go to work. While the economy struggles to add more jobs, many people, including those with developmental disabilities, have lost their jobs or can’t find a position. In addition, the legislature reduced the budgets of many state agencies that have had to reduce staff and services, including day services and competitive, integrated employment services. In this article, state leadership talks about the opportunities and challenges that exist.

As I have written before, GCDD continues to work on its Five Year Strategic Plan. I want to thank all of you who participated in the public input part of this process. We have held three townhall meetings, collected over 325 responses to our online survey and completed six focus groups. This information will help us determine what we will work on over the next five years. You will have the opportunity next spring to comment on what we have proposed to do.

One thing we heard from you all is concern about the status of legislative advocacy, especially in light of budget cuts. Specifically, many of you told us you were unhappy with how recent budget cuts, including $91 million in cuts to services provided by the Department of Behavioral Health & Developmental Disabilities (DBHDD), will continue to impact our community. We also heard that you were looking for more ways for GCDD – and you! – to become involved in effective advocacy.

As a state agency that receives federal dollars, GCDD cannot aggressively lobby as one may traditionally think of lobbying. We are an advocacy organization charged with educating and informing the community and policymakers about what issues matter to the disability community. And, we are just one part of the puzzle. While GCDD helps to organize advocacy efforts by providing information and support, it is up to YOU, as Georgians, to also advocate and build relationships with lawmakers and other decision-makers that affect your everyday life. While it may be difficult during this time to come to the Capitol, your elected officials are in their communities and perhaps more accessible to you. Connect with them and educate them about issues such as the waiting list for home and community-based services. With the election just weeks away, this matters now more than ever! Ask those running for election if they will support increased funding for employment, housing and transportation services. We cannot tell your story for you. YOU are at the heart of what we, as an entire state, can accomplish.

Finally, we are changing a few things to the magazine. We will now feature an Include College Corner, featuring stories of inclusive post-secondary education (IPSE) programs around Georgia. And we are adding a Self-Advocacy Spotlight, first-person essays written by members of Uniting for Change. Be sure to check this out and hear what people with developmental disabilities are saying about what happens in Georgia.

Check out GCDD’s website and join our advocacy network so that you can stay informed. We hope you enjoy reading this magazine, and we want to hear from you. Let us know your thoughts by writing to Managing Editor Hillary Hibben at .

Eric E. Jacobson
Executive Director, GCDD

Tell us your thoughts about the magazine or what topics you would like to see addressed by emailing us at , subject line: Letter to the Managing Editor


Read the entire Making a Difference - Fall 2020 

GCDD's 16th Disability Day at the Capitol

 

MEDIA ADVISORY 
Jobs, Education Among Legislative Priorities 2,000 People Will Meet, Tell Stories, Call To Gold Dome For Support 

WHAT: One of the largest public gatherings held annually during the official legislative session emphasizes the statewide need for community-based services and vital supports for people with developmental disabilities. The event is themed "We All Have A Story...What's Yours?" and in the spirit of the day, attendees will be encouraged to rove through the crowd sharing stories. Select "I Am Olmstead" stories will be recorded by StoryCorps and, at the Freight Depot, people can sign up for future StoryCorps sessions as well as hear pre-recorded narratives of "I Am Olmstead – Stories of Freedom" at listening stations.

WHY: Georgia is a focal point for disability rights and home state of The Olmstead Decision, the 1999 landmark US Supreme Court case brought by the Atlanta Legal Aid Society, on behalf of two Georgia women, affirming the right of people with disabilities to live in the community rather than institutions and nursing homes. Freedom for people in institutions is part of GCDD's 2014 legislative agenda along with:
• Supported employment in the community
• Inclusive post-secondary educational opportunities
• Unlock the Waiting Lists! Campaign, Children's Freedom Initiative (CFI), housing voucher programs, changes in the standard to prove intellectual disabilities in capital punishment cases, and the Family Care Act (HB 290).

Over 7,500 Georgians are on the waiting list to receive funding of community-based services and vital supports. One in five Georgians and about 57 million Americans have some type of disability as an occurrence of birth, injury or longevity.

WHO: Georgia Council on Developmental Disabilities (GCDD, www.gcdd.org), Sponsor/Host: Eric E. Jacobson, executive director; Mitzi Proffitt, chair

Capitol Rally at 11 am:
• Governor Nathan Deal will address the gathering.
• Jennifer Laszlo Mizrahi, founder, CEO and president of RespectAbility, will deliver keynote about "empowering people with disabilities to live the American dream" through jobs and voting rights.
• Talley Wells, director of the Disability Integration Project, Atlanta Legal Aid Society.
• Andrew Furey, self-advocate, artist and Eagle Scout from Lula who fought a long, frustrating battle to receive nursing supports in his home.
• State legislators and other elected officials.

WHEN: Thursday, February 20, 2014
9:00 am – Registration and Exhibit Hall: accessible voting machine demonstration, creation of a giant collective story narrative collage, sign-making, plus StoryCorps listening / sign-up station and other activities Georgia Freight Depot
11:00 am – Rally at the Capitol Steps
12:00 pm – Lunch (Legislators, Constituents, Advocates) Georgia Freight Depot
12:45 pm – Advocacy Awards

WHERE: Capitol steps, Atlanta: Washington Street side and adjacent Georgia Freight Depot

Media packets available for pick up at white "Media Tent" on Capitol steps behind the podium.

CONTACT:
Valerie Meadows Suber, Public Information Director 
Georgia Council on Developmental Disabilities 
404-657-2122 (office); 404-226-0343 (mobile) 
 
Follow Updates on Twitter at #GCDDAnnualDisabilityDay

PUBLIC POLICY FOR THE PEOPLE: The Disability Vote Counts!

“VOTE LIKE YOUR LIFE DEPENDS ON IT, BECAUSE IT DOES!” – Justin Dart

In this edition of Public Policy for the People, we will be focusing on the upcoming 2020 election, which sees key national and state seats up for grabs. This election will certainly be one for the history books, as much of our attention has been paid to the current COVID-19 pandemic, making this campaign season unlike any in modern history. To prepare you for the upcoming election, we want to make sure you are an informed voter, not only on the candidates and their platforms, but also on your rights as a voter. Let’s discuss which seats are up for election and where the candidates stand on issues important to the disability community.

FEDERAL RACES*

Candidates for President of the United States

Every four years, we elect the next incoming president. During this presidential election, we will choose between the current president and a challenger. We have been encouraged to see more robust disability plans during this presidential race than in years prior. Below is a brief overview of each candidate’s disability platform.

Republican Candidate: Incumbent Donald J. Trump and Vice President Mike Pence

President Donald J. Trump is the 45th president of the United States of America representing the Republican Party. Trump ran as a member of the Republican Party, and he beat the Democratic challenger former Secretary Hillary Clinton by 77 votes in the Electoral College. You can read more about Trump’s campaign here. 

As an incumbent president, we can look to Trump’s proposed plans, as well as his record on key issues while in office. Although disability policy is not specifically mentioned, we can look at the areas where we most often see policies created that impact people with disabilities: employment, education and healthcare.

Employment: Trump touts his influence on an improved economy, which has seen record job growth and increased wages for workers. Of note, disability employment is not highlighted, and the unemployment rate for people with disabilities continues to hover around 70 percent.

Education: Trump and his administration state their support on the expansion of school choice. It is important to note that many in the disability community have voiced strong concerns regarding school choice expansion, as private education systems are not bound to the same requirements to support children with disabilities as the public school system.

Healthcare: Trump has called for the repeal of the Affordable Care Act insurance mandate, which means people would no longer be penalized for not having health insurance. However, concerning healthcare policy in the disability community, Trump has consistently proposed budget cuts to Medicaid and other disability-specific programs, such as the Special Olympics, which includes a strong initiative to improve the health and wellness of people with disabilities.

Additional policy considerations:

Access to Housing: Although no official statement appears on the campaign website, the candidate’s position on this issue is made clear in the Housing and Urban Development (HUD) agency press statement about its new budget. Some of Trump’s budget modifications include $2.8 billion to assist the fight to end homelessness; a record $425 million to boost healthy homes; and also $41.3 billion to help Americans pay rent. However, it is important to note that Trump’s budget proposal for HUD had push back from both Republican and Democratic lawmakers, as the proposal requested a 15.2 percent cut, which would translate to an $8.6 billion budget cut.

Transportation: Although no official statement appears on the campaign website regarding transportation for people with disabilities, the candidate did address transportation for people with disabilities in his interview with the American Association of People with Disabilities (AAPD) in 2015. He states, “This is a critical question that must be dealt with by the federal government. We should integrate into our investments in infrastructure and transportation, assets and policies that provide for the services required by people with disabilities, to the extent possible.”

Democratic Candidate: Vice President Joe Biden and Senator Kamala Harris

Joe Biden was the 47th vice president of the United States and former U.S. Senator from Delaware. He won the Democratic nomination for president in 2020. You can find more information on the Biden-Harris campaign website.

The campaign has released the “Biden Plan for Full Participation and Equality for People with Disabilities,” which outlines his campaign’s priority policy areas to improve supports and services for people with disabilities. Biden has also developed a specific plan to support people with disabilities during the COVID-19 pandemic.

It is important to note that as a challenger, we do not yet have specific examples of what actions Biden has taken as president. We can, however, provide information regarding his promises on disability issues. Some of Biden’s disability policy proposals include:

Employment: Biden has stated his support for expanding competitive, integrated employment opportunities for people with disabilities. He has also promised to phase out subminimum wage for people with disabilities by supporting and getting passed the Transformation to Competitive Employment Act.

Education: As a U.S. Senator, Biden supported the passage of the original Individuals with Disabilities Education Act (IDEA) in 1975 and has promised as president to fully fund IDEA. Biden has also promised to direct his Health and Human Services (HHS) department to ensure all eligible children receive Early and Periodic Screening, Diagnosis and Treatment (EPSDT) services. For older students, Biden has promised to increase funding for Transition and Postsecondary Programs for Students with Intellectual and Developmental Disabilities (TPSID), an initiative that provides funding for inclusive postsecondary education (IPSE) programs in Georgia.

Healthcare: Biden has promised to increase access to home and community-based services (known in Georgia as NOW/COMP, ICWP and CCSP Medicaid waivers); invest in the direct care workforce; and support informal and family caregivers.

Additional policy considerations:

Housing: Biden has promised to expand affordable, accessible housing options for people with disabilities and has indicated he will secure investments to the Supportive Housing for Individuals with Disabilities (also known as “Section 811”) programs.

Transportation: Biden has promised to address accessibility barriers to transportation for people with disabilities. He specifically indicated support for incorporating universal design into new modes of transportation and ensuring the accessibility of air travel.

Libertarian Candidate: Dr. Jo Jorgensen

Dr. Jo Jorgensen is a senior lecturer in psychology at Clemson University. Dr. Jorgensen does not have a disability-specific platform. As she has not held public office, we do not have access to any previous actions that have impacted the disability community. However, you can read more about her positions here.

Green Party Candidate: Howie Hawkins

Howie Hawkins is a retired construction worker and a member of the International Brotherhood of Teamsters, where he worked at UPS. Hawkins has run for the Governor of New York in 2010, 2014 and 2018. Hawkins does not have a disability-specific platform and does not have a voting history to discuss from previous public office holdings. You can read more about his positions here. 

For a great overview of the candidates running for president in 2020, including a list of each of their platforms, feel free to visit #CripTheVote’s blog on the 2020 presidential candidates.

GEORGIA-BASED RACES TO WATCH

For the past few decades, Georgia has been considered a solidly Republican state; however, over the last few years, Georgia has started to poll toward the middle of the political spectrum, which has created increased interest and investment in our U.S. Senate and House of Representatives races. In this section, we review key federal races to watch in Georgia.

Georgia’s U.S. Senate Race:

Sen. David Perdue: Republican (Incumbent)

Jon Ossoff: Democrat

In one race, we have incumbent Senator David Perdue (R) running against challenger Jon Ossoff (D). Both are likely familiar names, as Perdue has served in the U.S. Senate since 2015, and Ossoff ran for Georgia’s 6th congressional district during the 2017 special election, which was one of the most expensive House races in the country.

Although neither have a specific disability platform, you can find out more information about their stances, including Perdue’s voting history below:

Georgia’s U.S. Senate Race: Special Election – Jungle Primary

Our second U.S. Senate race can be a bit confusing, as it is not happening during the typical election timeline for that specific seat. After Sen. Johnny Isakson announced his early retirement, Governor Brian Kemp appointed Sen. Kelly Loeffler to hold that seat until the upcoming election on Nov. 3. This specific election did not have a primary election prior to the general election, which typically serves to narrow down the field of candidates running.

The reason this election is called a “jungle primary” is because all candidates could run for the same office, regardless of political party. As such, we find ourselves with multiple candidates from the Republican and Democratic parties running for the seat. In order to secure a victory, the top candidate must receive a majority of the vote. In the real likelihood that no single candidate receives a majority of the vote, the top two candidates will compete in a runoff election in January 2021.

Here is a breakdown of all those candidates, separated by party. Of note, no candidate in this race has created a disability-specific platform.

REPUBLICAN CANDIDATES

Please click on each candidate’s name to be taken to their “Issues” webpage to learn more about each candidate’s positions.

As both Republican candidates have served in public office, you can visit the links below to learn more about their voting history.

DEMOCRATIC CANDIDATES

Please click on each candidate’s name to be taken to their “Issues” webpage to learn more about each candidate’s positions. As Ed Tarver was a former US Attorney, Southern District of GA, click on Ballotpedia for info as well.

Key Congressional District Race to Watch: Georgia’s 6th District

For decades, Georgia’s 6th district for the U.S. House of Representatives has been a solid Republican seat whose winners – Newt Gingrich, Johnny Isakson and Tom Price – became major figures in the Republican Party. Georgia has slowly shown more diversity within its elections, which is why the 6th district is on our hot list of races to watch. The two candidates for the current 2020 election include:

As both candidates have served in public office, you can visit the links below to learn more about their voting history.

Key Congressional District Race to Watch: Georgia’s 5th District

Georgia’s 5th congressional district was represented by the late congressman John Lewis since 1987. For the first time in over 30 years, this district will now be represented by someone new, so we included it in our list of races to watch. Lewis originally won the 2020 Democratic primary race for the seat before his unexpected passing. Georgia’s Democratic Party then selected state Senator Nikema Williams to serve as the Democratic candidate on the ballot. The two candidates include:

STATE RACES*

Don’t forget that local seats matter too! With the federal election coming up we must not forget an important fact: local senators and representatives are also up for election. Georgia has 56 state senators and 180 state representatives, and they are ALL up for election.

Visit Open States online to find out which state senate and house district you live in, and the current state legislators who represent you. You can even see the committees the legislators serve on and the bills they have sponsored. Visit Ballotpedia to learn more about the election history of your state-level districts and whether or not your current legislator has a general election challenger.

* It is important to note that GCDD does not endorse any candidate and that the enclosed information encompasses only a small piece of a larger political platform for each candidate. We encourage you reach out to them with questions of your own – and to vote.

by Alyssa Lee, PsyD, GCDD Public Policy Research & Development Director and Charlie Miller, GCDD Legislative Advocacy Director


Read the entire Making a Difference - Fall 2020 

PUBLIC POLICY FOR THE PEOPLE: What to Know At The Polls

There’s a lot of information out there. Here’s how to make sure you’re prepared to make your vote count.Cheri Mitchell is a member of the HAVA (Help America Vote Act) Team at the Georgia Advocacy Office (GAO). Here are some of the most common issues she sees voters with disabilities have on election day, as well as how to navigate them.

“Under the Help America Vote Act, voters with disabilities are entitled to the same opportunities for both access and participation as all other voters.”

WHERE DO I GO TO VOTE?
Voters can find their polling place online at the Georgia Secretary of State (SOS)’s website: mvp.sos.ga.gov. The SOS also has a smartphone app available.

WILL THE POLLING PLACE BE ACCESSIBLE TO ME?
By law, all polling places should be accessible. The Secretary of State will be providing “readers” to those who need them for the paper ballot printed at the end of a voter’s session. If you would like to familiarize yourself ahead of time with Georgia’s new voting machine, watch Georgia Public Broadcasting’s video here.

WHAT ARE MY RIGHTS AS A VOTER?
“Under the Help America Vote Act, voters with disabilities are entitled to the same opportunities for both access and participation as all other voters,” Mitchell says. “Additionally, Title II of the Americans with Disabilities Act requires that governments provide people with disabilities a full and equal opportunity to vote.”

The Georgia Advocacy Office will also release a survey in November following the election for voters with disabilities who experienced issues voting in the election. If you would like to receive a survey, contact Mitchell by email at or call the GAO office at 404-885-1234.

IS TRANSPORTATION AVAILABLE?

You have a few options for getting to the polls. Uber and Lyft often offer discounts for rides, and if you have a MARTA Mobility Breeze Card, you may be able to make a reservation for a ride to your polling location.

Mitchell says there are multiple organizations that may be able to assist voters with transportation: “The Georgia Democrats Voter Protection Line (888-730-5816) has provided free rides to the polls, and the Republican Party of Georgia may also be able to assist (404-257-5559). You may also try the League of Women Voters (404-522-4598).”

Voters unable to get to their polling place may request a mail-in ballot and vote from home. “The ballot must be received by your county registrar by the time the polls close for voting,” Mitchell says. You can request a mail-in ballot anytime between 180 days before the election to the Friday before the election (Oct. 30).

AM I ALLOWED AN ASSISTANT INSIDE THE POLLING PLACE?

The Voting Rights Act of 1965 allows voters to bring someone with them to assist them with voting. In a federal election, this can be anyone except an employer, a representative of your employer, or a representative of your union, if you belong to one. Poll workers and watchers who are residents of your precinct are not allowed to help.

WHAT ELSE SHOULD I KNOW?

If you run into any issues while voting, ask for a provisional ballot. You have 48 hours to resolve the issue, and you can see the status of your provisional ballot through the SOS app or website. Mitchell says to vote early in the day if you can. “In Georgia, voters with disabilities do not have to wait in line at a polling place if they arrive between 9:30 AM and 4:30 PM,” she says.

Your vote counts. Take your time and ask for help if you need it.

RESOURCES:

GAO’s Voter Protection Hotline:

From now through election day, voters with disability-related issues can call GAO at:

(404) 885-1234 or (800) 537-2329

Having trouble registering to vote, requesting an absentee ballot, accessing early voting, etc.? Leave a message and someone will contact you within two business days!

VOTING 101

STEP 1

Check in with a poll worker.

  • Provide a valid photo ID, which the poll worker will scan to verify that your voter registration information is correct.
  • Sign the Elector Oath.
  • The poll worker will then load your ballot onto a voter access card and hand it to you.

STEP 2

Place the voter access card into the voting machine.

  • The ballot will appear on the screen and you will make your selections.
  • Accessible options are located in the top right corner of the screen:
  • Change language
  • Text size
  • Screen reader
  • High contrast view
  • Sip and puff technology for the physically impaired

STEP 3

Select your candidates by touching the screen.

  • If you would like to change your choice, touch that candidate again and the screen will clear.
  • You can review your choices when you are done selecting.

STEP 4

Print and review your ballot.

STEP 5

Insert the ballot into the scanner, which will confirm that your vote has been cast.

VOTER CHECKLIST

REGISTER TO VOTE

  • Visit sos.ga.gov.
  • Enter your name, date of birth, address, county of residence and your driver’s license or state ID number.
  • Applications can be completed online or printed and mailed in.

VOTING IN PERSON ON ELECTION DAY

You must be registered to vote. Bring ONE photo ID to your polling place:

  • Any valid state or federal government-issued photo ID, including a free Voter Identification Card issued by your County Registrar’s Office or the Georgia Department of Driver Services
  • A Georgia driver’s license, even if expired
  • Valid employee photo ID from any branch, department, agency or entity of the U.S. government, Georgia, or any county, municipality, board, authority or other entity of this state
  • Valid U.S. passport
  • Valid U.S. military photo ID
  • Valid tribal photo ID

RESOURCES

How to download a sample ballot or apply for an absentee ballot:

  • Visit sos.ga.gov.
  • Once there, you will need to enter information such as your name, date of birth and county of residence.
  • If you’re not registered, you can do so by supplying your driver’s license or state ID number.
  • Applications can be completed online or printed and mailed in.

Additional voting resources for people with disabilities: REV UP GEORGIA: REGISTER, EDUCATE, VOTE, USE YOUR POWER

ACLU OF GEORGIA

Advocates for the voting rights for all residents of Georgia

The information on these two pages was taken from: Your Vote Counts,  GCDD’s guide for Georgians with disabilities heading to the polls.


Read the entire Making a Difference - Fall 2020 

REAL COMMUNITIES - Welcoming Community Dialogue Groups Host Virtual Retreat and Summit

Twenty-seven community advocates for inclusion and change from the Real Communities Partnership (RCP) and the Welcoming Communities Dialogues (WCD) groups gathered virtually from August 19 to 21 for their annual retreat.

For those three days, the work centered around their response to a movie called “Why I Write,” a film about bettering one’s community through art and action, developed and produced by the Hearts and Minds Film Initiative and TELEDUCTION.

“We were excited to hear the community discussion around the movie and to discover what was familiar to retreat attendees, what was unfamiliar and what was a challenge for some,” said Malaika Geuka Wells, community organizing coordinator for Global Ubuntu, the organization that manages RCP and WCD.

During the retreat, people were asked to express their vision of what their community would look like within the next five years via art. Using supplies on hand, from paper to magazines to pictures, participants spoke through their art about their hopes and dreams for their communities in achieving the Welcoming Communities’ mission to pave the way toward an equitable and just society where people across race, ethnicity, culture, class, socioeconomic background, educational status, abilities, gender and religion are treated with dignity and respect.

The retreat was followed by three virtual workshops that helped participants understand the fundamental forces of the current economic and governance systems; envision a democratic and sustainable future; and strategize toward building a new solidarity economy, which is an economy that is created with people, instead of profit, in mind.

These workshops provided an introduction to Highlander’s Mapping Our Futures curriculum, which shares innovative strategies from across the globe that are advancing new economies and shifting the ways groups organize themselves, govern their work together, resist capitalism’s structurally designed inequities and transform people’s lives and conditions.

The workshops focused on Setting the Stage and Community Mapping; Capitalism and the Solidarity Economy; and Beautiful Solutions: Examples of Solidarity Economy.

Other plans for this Georgia Council on Developmental Disabilities (GCDD) initiative included the second annual Welcoming Communities Dialogue Summit on Sept. 26. This year, it was held virtually and targeted social justice, disability and race. Woven throughout the discussions were restorative and healing dialogues led by the Mindfulness with Favor organization. “Our goal is to describe systems of injustice, root out and remove systemic issues, and supply the safe space to talk about it,” said Sumaya Karimi, the project organizing director for RCP and founder and director of Global Ubuntu.

Karimi also explained Global Ubuntu is working to move the focus from the project base of Real Communities where assistance was given to individuals to fit into their communities to a movement base via the Welcoming Community Movement Fund, adjusting communities to be welcoming and adaptive to all who already live there.


Currently, out of Georgia’s 159 counties, the Welcoming Communities Dialogue groups operate in 10 areas across the state. “We plan to expand the movement and to share best practices for others,” Karimi added. Through the lens of the Welcoming Community Movement Fund, the participants will build and sustain a movement where the culture shifts from one of hate, unfairness and dehumanization to one of love and belonging, where the principle of morality is practiced as the norm.

For more information on this GCDD initiative, please visit the websites of Global Ubuntu and the Georgia Council on Developmental Disabilities.

The Welcoming Community Dialogues initiative is part of the Real Communities Partnerships, funded by the Georgia Council on Developmental Disabilities and managed by Global Ubuntu.

by Jennifer Bosk


Read the entire Making a Difference - Fall 2020 

The State of Employment: Collaboration, Change and Solutions Amid COVID-19

On June 16, 2020, Governor Brian Kemp announced Chris Wells as the new executive director of the Georgia Vocational Rehabilitation Agency (GVRA). The agency has been undergoing re-organization for the past five years, meaning it has been in a state of perpetual change.

Before Wells’ arrival, GVRA began a major reorganization after years of criticism. The agency, which serves as Georgia’s main employment services resource for people with disabilities, conducted an independent review that identified major problems, including a problematic internal culture, low case closure rate, too many managers and too few well-trained agents.

There have been four executive directors at GVRA in the last five years. Wells’ two predecessors similarly reorganized the agency under the direction of outside consultants. Wells is trying to manage the restructuring while keeping clients safe in a pandemic, in part by using technology and working with providers to offer virtual services. Mainly, he’s working to return the agency to full service as a reformed body, more accessible and collaborative moving forward.

The widespread, existing issue of underemployment for people with disabilities has been exacerbated by the turmoil of COVID-19, but many advocates and government administrators see opportunities in a time of disruption and overhaul.

“I think that agencies are starting to think about where we can move resources to have the greatest impact on somebody’s life,” said Eric Jacobson, the executive director of the Georgia Council on Developmental Disabilities (GCDD).

Since July, GVRA has updated its provider manual, case management system and customer care line. “That way, when we do come out of the pandemic, we’ve addressed some of the concerns from a data-driven analysis perspective,” Wells said.

Advocates in Georgia’s disability community have long pointed to employment as an area in need of improvement, as many individuals have trouble finding effective and accessible employment supports such as job development and job coaching. As with many disability services, opportunities vary by location, and no two people are the same.

Some individuals don’t seek state assistance, but that doesn’t mean they aren’t on their own path forward. In 2010, Jenna Quigley and Donna Williams started a greeting card business called Just for You Card Art. The best friends had a shared passion and idea: a way to make money doing what they already found fun and relaxing.

With help from parents and organizations, the two began making cards and fulfilling orders that ranged from birthday greeting cards to wedding invitations. Together, Quigley and Williams traveled to present at conferences and meet prospective customers.

By early 2020, both had settled into part-time restaurant jobs. Before the pandemic picked up, they had been receiving orders for hundreds of cards, but the process wasn’t as relaxing anymore. Quigley and Williams, enjoying their new jobs, decided the card business had naturally run its course, and they dissolved the company.

“We loved doing it,” Quigley said. “My favorite part was to show them to people. I made a lot of people’s day – to be happy, to be surprised.”

Still, the two catch up constantly on Zoom. Williams is back working as a barista at BrewAble Cafe, and Quigley is waiting to return to her job at Pancake Social until it’s a little safer. She’s been visiting the restaurant for takeout, and the manager calls her to check in.

Covid 19, almost 1 million Americans with disabilities lost their jobs. Unfortunately, not everyone has been able to secure work through the ongoing COVID-19 pandemic. Since the start of the crisis, almost one million Americans with disabilities have lost their jobs, according to the New Hampshire University Institute on Disability, and other data shows that those with disabilities have been hit harder than others.

Before the pandemic, people with disabilities were more than twice as likely to be unemployed than those without a disability. In February, the U.S. Bureau of Labor Statistics (BLS) reported the unemployment rate for people with disabilities in the working-age population was 7.3 percent. In July, the Department of Labor’s Office of Disability Employment Policy (ODEP) released unpublished BLS data showing the unemployment rate had risen to 14.8 percent for people with disabilities who were working before the pandemic. According to BLS, one in five workers with a disability have lost their jobs since March, versus one in seven of the broader working population.

Employment Services, Councils & Initiatives Adapt

A variety of agencies, institutions and organizations are tasked with empowering individuals on their journey to independent living, and underemployment has long been a key advocacy issue. In order to meet the needs of a population as large and heterogeneous as the disability community, agencies need to be flexible and collaborative.

As government entities face changing circumstances, they have the opportunity to review priorities and reassess best practices. Current interruptions to services are felt by both providers and those needing support. It is more critical than ever for all service systems to work together in order to meet the changing needs of the communities they serve; unfortunately, these systems aren’t always in alignment.

“We have to make sure that we can help people exist in this kind-of new climate: telework, entrepreneurship, micro-enterprise,” said Doug Crandell, an expert in customized employment and disability employment policy at the Institute on Human Development and Disability (IHDD) at University of Georgia. “All of that is possible, but we’ve got to align what we’re doing. And right now, if a person asks for self-employment or micro-enterprise support at Georgia Department of Behavioral Health and Developmental Disabilities (DBHDD) or GVRA, they’re likely not going to get it.”

One agency won’t single-handedly solve underemployment for folks with disabilities, but they can improve their services to make a stronger impact. DBHDD oversees a network of approximately 700 community-based service providers for people with intellectual and developmental disabilities, as well as the administration of COMP and NOW Waivers.

Ultimately, DBHDD connects people to services, and Commissioner Judy Fitzgerald recently announced an effort to prioritize employment. Wells of GVRA recognizes his agency’s past shortcomings, and he also has a different vision moving forward.

In 2018, the Georgia General Assembly passed House Bill 831, Georgia’s Employment First Act, which established the state as one where competitive, integrated employment is the “first and preferred” option for people with disabilities, regardless of the severity of the disability. The legislation also created the Employment First Council (EFC), which is federally funded.

“They have the legislative authority to create that set of recommendations, give it to the governor, give it to the legislature, and push policies that are going to be more friendly towards getting people work,” said Jacobson, who sits on the council.

The EFC is made up of 14 individuals with disabilities, ties to the community or involvement in state agencies serving the community. Chaired by the executive director of GVRA, now Wells, the council meets quarterly and releases an annual report. The report is typically released in October, but it will be delayed this year.

Wells says the council needs a strategic plan moving forward, and they’ve moved to establish one when they meet again in October. Other members also say now is the time, when nothing is normal, to create a shared outlook.

“I think we have to keep our eye on the goal,” said John Wells, the vice chair of the EFC (no relation to Chris Wells). “We are transitioning from sitting at home, or sitting in day services, to employment. Everybody needs to be on the same page; everybody needs to coordinate their efforts.”

Many professionals and advocates around the state are working to facilitate employment in a changing landscape. Fitzgerald says that an economic downturn could have a silver lining in honing services.

“We have to make sure we don’t have redundancies,” Fitzgerald said. “The most important question we ask for ourselves … is, how do we use state and federal funds to incentivize the right things? So, if we want people to be able to move towards competitive, integrated employment, does the way we spend our dollars help move people in that direction?”

Jacobson says that dollar allocations of budgets are their own priority statements, and it’s important they reflect the community’s needs. Crandell notes that the ongoing, collective disruption to daily life is an opportunity for providers to adapt.

“We need to change policies and procedures –- both in our Medicaid Waiver funding and with vocational rehabilitation – around making sure people have access to telework, supported self-employment, [and] entrepreneurial initiatives,” Crandell said. “That’s something I think we’ll see a lot more of post-pandemic.”

Emerging Solutions: Entrepreneurship, Self-Employment and Micro-Enterprise

Nandi Isaac is a self-advocate, businesswoman and Special Olympics athlete from Macon, GA. In 2007, Isaac founded Scan with Nan, a micro-business and digital preservation service for photographs and documents.

After holding various jobs that didn’t work out, Isaac discovered her passion for photography through a local club called the ShutterBugs Club. She credits the club with enhancing her ability to look at pictures and study them carefully. From the hobby, she was able to find a passion and business.

“Being a businesswoman and being self-employed made me have confidence and made me a better self-advocate in my community,” Isaac said. “And I met really cool people, and I got to save their memories.”

Isaac received support from her family and community, and she now has an operational website and social media accounts, though marketing is a challenge for her. After 13 years in business, Isaac thinks self-employment is an ideal option for people with developmental disabilities. “They can use their given talents, be flexible with time and use supports at home based on their needs.”

The 2019 BLS report on labor force characteristics found that, “a larger share of workers with a disability were self-employed in 2019 than were those with no disability (10 percent versus 5.9 percent).” Isaac’s story is one piece of a larger trend that providers and agencies are beginning to catch onto.

Sulaimon Salam Bamidele is originally from Nigeria, and he’s a trained broadcast radio journalist and DJ. Salam says his experience becoming blind, and the listless days that followed, led him to his passion for journalism. His local school system in Nigeria did not support his education, so he was at home while school aged. A family member told him about a school for the blind which he began attending at the age of 18. Salam now hopes to disseminate useful information to the world and make an impact.

After coming to the U.S. in 2014, Salam was staying with his godmother when her husband suggested he start his own media company. The conversation planted a seed, and the possibilities instantly came to him. Salam is now the owner of SUSABAM GD Communications, Inc. He produces a daily live show on Great Dreams Radio, a subsidiary he calls “GD radio station.”

“Choosing to work for myself, to create my own business, allows me to have unlimited space to be creative and to impact the community and the people at large,” he said.

Getting started, Salam had just one computer, so he couldn’t DJ while transmitting a radio broadcast. Eventually, he was able to save up and buy another. He was able to build resources, develop his network and grow his operation. Salam enjoys his work, and he enjoys being self-employed.

“I want to work with my own time,” Salam said. “I’m a creative person. I don’t like to be limited. I love my space, I cherish my time and I use those to the best of my ability.”

Synergies Work is a Georgia-based, nonprofit organization that provides funding and guidance to entrepreneurs who may not otherwise have the opportunity to start a business. The organization and its founder, Aarti Sahgal, had a prominent hand in the development of Isaac’s and Salam’s businesses.

“This is the biggest minority in our country,” said Sahgal. “And yet, when we talk about diversity, we don’t talk about disability. Our approach to employment is limited. We talk about choices, but we’re not giving that choice when it comes to employment.”

Sahgal sees this as the right time and place for Synergies Work to grow and continue to fill a vital need. Sahgal notes that the access to conventional professional networks is lacking for young people with disabilities, a critical disadvantage in the worlds of business and entrepreneurship.

“Running a business is running on a treadmill,” said Sahgal. “If you stop, you’re going to fall. That’s what I’m interested in. How do you make sure that the businesses that you’re setting up become sustainable?”

At Synergies Work, the goal is to provide unique, personalized service in the form of technology, resources and contacts at no cost to entrepreneurs. Minna Hong is a mixed medium artist, entrepreneur and board member at Synergies Work. Hong says some entrepreneurs are ready to sell a product, and some are nowhere near close. For them, it’s about empowering someone to move further along in their journey and closer to their goal. “They have to do as much if not more,” she said.

Brandon CantrellBrandon CantrellBrandon Cantrell turned his passion for crochet into his own business, Crochet by Brandon. is another entrepreneur with a passion for crochet. Cantrell was introduced to Sahgal through the Georgia Advocacy Office earlier this year. Sahgal showed Cantrell that money could be made with his hobby and helped set up his website. Before they met, he was giving his creations away.

Before starting his micro-enterprise business, Crochet by Brandon, Cantrell sought support through multiple agencies and local providers, but GVRA services and DBHDD day programs were unfulfilling. He had loved crochet since his grandmother showed it to him when he was 10 years old, and with a new perspective, he was able to turn it into more.

“It lets me be my own boss,” Cantrell said. “It lets me make my own hours. It gives me a shot at doing something I enjoy and seeing people’s reaction. Having a purpose. It makes me feel like a contributing member of society.”

Cantrell works in his crafts room. He hands out business cards wherever he goes. His sales have seen a downturn, as with many others, but Cantrell and his mother expect business to pick up as the weather gets colder.

Supporting Entrepreneurs

Starting from scratch is hard work. Universally, entrepreneurs need support, whether their business is large or small. Many join incubators or get connected with mentors. Nandi Isaac was having the most trouble with her digital presence and marketing before she got connected to Sahgal.

“Becoming a businesswoman has taught me how to use technology and marketing,” said Isaac. “This has improved my life and my ability to be a self-advocate.”

Quigley and Williams appreciate their family, friends and community for their help, and they’re not worried about the future. Both are enjoying their current jobs, but they cherished their experience as business owners and entrepreneurs. Quigley sees self-employment as a viable option for other people with disabilities. “I think other people can help them and support them in the right direction.”

There are many organizations that offer help and resources, including the Advancing Employment Technical Assistance Center at IHDD. The Georgia Micro Enterprise Network (GMEN) is a nonprofit organization that supports and funds underserved entrepreneurs.

In some states, agencies have sought out opportunities to receive support to adopt new solutions. Through ODEP’s Advancing State Policy Integration for Recovery and Employment (ASPIRE) program, 12 states and Washington D.C. will receive assistance aligning their disability employment systems and implementing specific plans through policy and strategy coordination. Georgia is not one of the states in the program, but ODEP is implementing a broader initiative called Visionary Opportunities to Increase Competitive Integrated Employment (VOICE) that could be taken advantage of in the future.

“DBHDD doesn’t do anything alone,” Fitzgerald said. “Our success is dependent on providers, families, academic partners – real experts who continue to advise us, and most importantly, people with disabilities who show us the way and make sure their voices are leading the work.”

Getting support for employment and aligning advocacy is more vital than ever during a pandemic. The recently formed Georgia Developmental Disabilities Network (GDDN) is a body made up of ten Georgia-based organizations focusing on the disability community. The network was established in response to COVID-19, and it provides people with resources to navigate a variety of challenges, including employment. Ultimately, the GDDN is meant to support advocates and align agencies as they deal with unprecedented times. The EFC, as a legislatively mandated body, also connects the leaders of various agencies to prioritize employment.

Recently, GCDD partnered with GreenWorker Cooperatives and graduated three teams through a program designed to expose young entrepreneurs to the worker-owned cooperative business model. In the past, GVRA programs have been criticized for focusing resources on pre-vocational services. Crandell says that this doesn’t track with most people’s lived experience: they just want to work.

“Our system is set up to reinforce providers to continually tell us why the person can’t go to work and needs more funded services prior to that,” Crandell said. “It just doesn’t mirror how Americans go to work. We get fired. We take a job we don’t like. We work early and work often … I think that the struggle is to get the funded system of disability employment to look much more like what naturally happens if you don’t have a label.”

Wells speaks on the past failures of GVRA with thoughtfulness and a positive energy. At the end of the day, he hopes that communicating with individuals in the community and using the current climate to reflect on the agency’s areas of improvement will lead to meaningful change.

“We are opening up our voices, and we’re opening up our ears, our eyes, in order to leverage the resources we have, along with our agency partners, to ensure that we’re moving everybody in the right direction,” said Wells.

State agencies and many organizations have largely decided moving forward that the right direction is towards competitive, integrated employment. Hong says this is vital, but people need to get creative and remember they’re speaking with individuals. Everyone has unique aspirations, and the path forward isn’t always obvious. “We can’t have a system where one size fits all; it doesn’t. It doesn’t really exist,” she said.

Ultimately, efforts to better empower and support people with disabilities on a path to employment must be mutable and human-centered to be effective. A rise in micro-enterprise and entrepreneurship could potentially help solve the underemployment crisis, but it could also make the world a more textured and joyous place. Salam hasn’t been able to professionally DJ since March, but he’s found ways to pour himself into his radio work and create new content. Either way, the business means more to him than profit.

“For me, work is loving my space, loving my time and using those to the best of my ability to make the world a better place,” said Salam. “So, it’s not really about how much I make in terms of dollars, the money. It is not about how much I make, you know, in figures. It’s about how much impact I’m able to make on people and society at large. That gives me more joy than making money for someone else.”

Check out videos of our entrepreneurs’ stories.

October is National Disability Employment Awareness Month (NDEAM) 2020. This year marks its 75th observance, as well as the 30th anniversary of the ADA.

by Clay Voytek


Read the entire Making a Difference - Fall 2020